The COVID-19 Pandemic: Bereavement Experiences Between Hospital and Home Deaths in Palliative Care.

Autor: Lobb E; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology (E.L.), Sydney, New South Wales, Australia; Department of Palliative Care, Calvary Health Care (E.L.), Kogarah, New South Wales, Australia. Electronic address: Elizabeth.Lobb@uts.edu.au., Maccallum F; School of Psychology (F.M.), University of Queensland, Queensland, Australia., Phillips JL; School of Nursing, Faculty of Health (J.L.P.), Queensland University of Technology, Kelvin Grove, Queensland, Australia., Agar M; Research Institute for Innovative Solutions for Wellbeing and Health (M.A.), IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney, Ultimo, New South Wales, Australia., Hosie A; School of Nursing, Midwifery, Health Sciences & Physiotherapy (A.H.), The University of Notre Dame Australia & St Vincent's Health Network Sydney, Darlinghurst, New South Wales, Australia., Breen LJ; Curtin School of Population Health (L.J.B.), enAble Institute, Curtin University, Perth, Western Australia, Australia., Tieman J; Research Centre for Palliative Care (J.T.), Death and Dying (RePaDD), College of Nursing and Health Science I RePaDD, Bedford Park, South Australia, Australia., DiGiacomo M; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney (T.L., S.I., S.C., I.G.), Ultimo, New South Wales, Australia., Luckett T; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney (T.L., S.I., S.C., I.G.), Ultimo, New South Wales, Australia., Philip J; Department of Medicine, St Vincent's Hospital (J.P.), University of Melbourne, Parkville, Victoria, Australia., Ivynian S; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney (T.L., S.I., S.C., I.G.), Ultimo, New South Wales, Australia., Chang S; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney (T.L., S.I., S.C., I.G.), Ultimo, New South Wales, Australia., Dadich A; Western Sydney University, School of Business (A.D.), Parramatta, New South Wales, Australia., Harlum J; District Palliative Care Manager & Service Development (J.H.), District Palliative Care Service, Liverpool Hospital, New South Wales, Australia., Gilmore I; IMPACCT - Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, Faculty of Health, University of Technology Sydney (T.L., S.I., S.C., I.G.), Ultimo, New South Wales, Australia., Kinchin I; Centre for Health Policy and Management, Discipline of Public Health & Primary Care, School of Medicine (I.K.), Trinity College Dublin, the University of Dublin, Dublin, Ireland., Grossman C; Calvary Health Care Bethlehem (C.G.), Parkdale, Victoria, Australia., Glasgow N; Australian National University College of Health and Medicine (N.G.), Canberra ACT, Australia.
Jazyk: angličtina
Zdroj: Journal of pain and symptom management [J Pain Symptom Manage] 2024 Feb; Vol. 67 (2), pp. 147-156. Date of Electronic Publication: 2023 Nov 15.
DOI: 10.1016/j.jpainsymman.2023.10.025
Abstrakt: Background: Australian COVID-19 public health measures reduced opportunities for people to communicate with healthcare professionals and be present at the death of family members/friends.
Aim: To understand if pandemic-specific challenges and public health measures during the COVID-19 pandemic impacted end-of-life and bereavement experiences differently if the death, supported by palliative care, occurred in a hospital or at home.
Design: A cross-sectional online survey was completed by bereaved adults during 2020-2022. Analyses compared home and in-patient palliative care deaths and bereavement outcomes. Additional analyses compared health communication outcomes for those identified as persons responsible or next of kin.
Setting/participants: Of 744 bereaved people; 69% (n = 514) had a death in hospital and 31% (n = 220) at home.
Results: The COVID-19 public health measures influenced people's decision to die at home. Compared to hospital deaths, the home death group had higher levels of grief severity and grief-related functional impairment. Only 37% of bereaved people received information about bereavement and support services. 38% of participants who were at least 12 months postdeath scored at a level suggestive of possible prolonged grief disorder. Levels of depression and anxiety between the two groups were not significantly different.
Conclusions: These findings highlight the need for health services to recognize bereavement as fundamental to palliative and health care and provide pre- and post death grief and bereavement care to ensure supports are available particularly for those managing end-of-life at home, and that such supports are in place prior to as well as at the time of the death.
(Copyright © 2023 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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