Perception towards palliative care among patients with pulmonary hypertension in malaysia: a correlation with disease status.

Autor:	Tye SK; Counselling and Chaplaincy Department, Institut Jantung Negara, Kuala Lumpur, Malaysia., Razali NS; Pulmonary Hypertension Unit, Patient Education Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia., Ahmad Shauqi SA; Pulmonary Hypertension Unit, Patient Education Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia., Azeman NA; Research Department, Institut Jantung Negara, Kuala Lumpur, Malaysia., Basran NF; Research Department, Institut Jantung Negara, Kuala Lumpur, Malaysia., Liew JHJ; Paediatric & Congenital Heart Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia., Leong MC; Paediatric & Congenital Heart Centre, Institut Jantung Negara, Kuala Lumpur, Malaysia.
Jazyk:	angličtina
Zdroj:	Cardiology in the young [Cardiol Young] 2024 Apr; Vol. 34 (4), pp. 900-905. Date of Electronic Publication: 2023 Nov 15.
DOI:	10.1017/S1047951123003773
Abstrakt:	Objectives: This study aimed to describe the perception of Malaysian patients with pulmonary hypertension towards palliative care and their receptivity towards palliative care. Methods: This was a cross-sectional, single-centre study conducted via questionnaire. Patients aged 18 years old and above, who were diagnosed with non-curable pulmonary hypertension were recruited and given the assessment tool - perceptions of palliative care instrument electronically. The severity of pulmonary hypertension was measured using WHO class, N-terminal pro B-type natriuretic peptide and the 6-minute walking test distance. Results: A total of 84 patients [mean age: 35 ±11 years, female: 83.3%, median N-terminal pro B-type natriuretic peptide: 491 pg/ml (interquartile range: 155,1317.8), median 6-minute walking test distance: 420m (interquartile range: 368.5, 480m)] completed the questionnaires. Patients with a higher WHO functional class and negative feelings (r = 0.333, p = 0.004), and cognitive reaction to palliative care: hopeless (r = 0.340, p = 0.003), supported (r = 0.258, p = 0.028), disrupted (r = 0.262, p = 0.025), and perception of burden (r = 0.239, p = 0.041) are more receptive to palliative care. WHO class, N-terminal pro B-type natriuretic peptide, and 6-minute walking test distance were not associated with higher readiness for palliative care. In logistic regression analyses, patients with positive feelings (β = 2.240, p = < 0.05), and practical needs (β = 1.346, p = < 0.05), were more receptive to palliative care. Conclusions: Disease severity did not directly influence patients' readiness for palliative care. Patients with a positive outlook were more receptive to palliative care.
Databáze:	MEDLINE
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