A consensus process to identify research priorities in paediatric urology in the United Kingdom.

Autor: Corbett HJ; Department of Surgery, Alder Hey Children's Hospital NHS Foundation Trust, Liverpool, L12 2AP, UK. Electronic address: Harriet.corbett@alderhey.nhs.uk., Clothier J; Paediatric Nephrology, Evelina London Children's Hospital, UK., Driver C; Department of Paediatric Surgery, Royal Aberdeen Children's Hospital, Westburn Road, Aberdeen, AB252ZN, UK., Farrugia MK; Department of Paediatric Urology, Chelsea & Westminster and Imperial College Hospitals, London SW10 9NH, UK., Garriboli M; Paediatric Urology, Evelina London Children's Hospital, London, UK., Gopal M; Department of Paediatric Surgery and Urology, Great North Children's Hospital, Newcastle Upon Tyne, UK., Kulkarni M; Paediatric Urology, Norfolk and Norwich University Hospital NHS Trust, UK., Marshall D; Royal Belfast Hospital for Sick Children, 180 Falls Road, BELFAST, BT12 6BE, UK., MacDonald C; Paediatric Urology, Sheffield Children's NHS Foundation Trust, UK., Radford A; Department of Paediatric Surgery, Hull Royal Infirmary, Hull University Teaching Hospitals NHS Trust, UK., Rhodes H; Department Paediatric Surgery and Urology, Birmingham Women's and Children's NHS Foundation Trust, Birmingham B4 6NH, UK., Williams A; Department of Paediatric Urology, Nottingham University Hospitals NHS Trust, UK., McCarthy L; Department Paediatric Surgery and Urology, Birmingham Women's and Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
Jazyk: angličtina
Zdroj: Journal of pediatric urology [J Pediatr Urol] 2024 Apr; Vol. 20 (2), pp. 240.e1-240.e8. Date of Electronic Publication: 2023 Oct 14.
DOI: 10.1016/j.jpurol.2023.10.010
Abstrakt: Introduction: Paediatric urologists manage a spectrum of conditions, much of the evidence for relevant treatment pathways is of low quality. For many conditions treatment varies according to location and surgeon; children with the same condition might have surgery in one unit but watchful waiting in another. Underlying this variation are differences in opinion, and insufficient high-level evidence with few prospective randomized studies. Such studies may be challenging to design, fund and recruit into, and are more likely to succeed if there is a collaborative approach. Research prioritization is a tool to identify the research of most value. Delphi methodology is an interpretive technique aiming to gain the consensus view of interested parties. The British Association of Paediatric Urologists (BAPU) set out to ascertain consensus on what paediatric urologists, working in the UK, consider to be areas of priority for research. This paper describes the process used, and the resulting list of research questions.
Methods: A scoping survey of paediatric urologists in the UK was undertaken to identify an initial set of research questions. These were refined by the BAPU research committee (BAPU RC), then prioritized using a modified Delphi process. During Stage 1a multiple new research questions were submitted leading to Stage 1b, an interim process. All UK paediatric urologists were invited to take part in Stage 2 of the prioritization process.
Results: Sixty-five questions were submitted to the scoping survey by 24 paediatric urologists. The BAPU RC refined these to 60 questions, which were submitted to Stage 1a of the modified Delphi process. Sixty-seven people completed Stage 1a, at the same time submitting 224 additional research questions. The BAPU RC revised the entire question set, ensuring the key subject of the original question was not altered and novel questions were retained. The BAPU RC undertook interim scoring of the resultant 79 questions, the top scoring 25 questions plus 5 lower scoring 'wild card' questions (to ensure the breadth of the specialty was represented) were put forward to Stage 2. A total of 65 people completed Stage 2, including a lay representative. A list of 30 priority research questions was generated; the top 10 includes management of neuropathic bladder, posterior urethral valves, antibiotic prophylaxis, DSD & CAH, continence, male external genitalia, VUR and transition care (Table).
Conclusion: This process has provided BAPU, paediatric urologists in the UK, and funders with areas of research considered a priority in the specialty.
Competing Interests: Conflict of interest None of the authors have any relevant conflicts of interest.
(Copyright © 2023 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.)
Databáze: MEDLINE
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