Patients' preferences for fracture risk communication: the Risk Communication in Osteoporosis (RICO) study.

Autor:	Beaudart C; Department of Health Services Research, Care & Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands. charlotte.beaudart@unamur.be.; WHO Collaborating Center for Epidemiology of Musculoskeletal Health and Aging, Division of Public Health, Epidemiology and Health Economics, University of Liège, Liège, Belgium. charlotte.beaudart@unamur.be.; Research Institute for Life Sciences (NARILIS), Department of Biomedical Sciences, Faculty of Medicine, University of Namur, Namur, Belgium. charlotte.beaudart@unamur.be., Sharma M; The OMC Research Center, Beverly Hills, CA, USA., Clark P; Clinical Epidemiology Unit, Children's Hospital of Mexico, Federico Gomez - Faculty of Medicine, National Autonomous University of Mexico (UNAM), Mexico City, Mexico., Fujiwara S; Department of Pharmacy, Yasuda Women's University, Hiroshima, Japan., Adachi JD; McMaster University, Hamilton, ON, Canada., Messina OD; Investigaciones Reumatológicas y Osteológicas (IRO), Collaborating Centre WHO, Buenos Aires, Argentina.; IRO Medical Center, Investigaciones Reumatologicas y Osteologicas SRL, Buenos Aires, Argentina., Morin SN; Department of Medicine, McGill University, Montreal, Canada., Kohlmeier LA; Spokane Osteoporosis and Endocrinology, Spokane, WA, USA., Sangan CB; Royal Osteoporosis Society, Bath, UK., Nogues X; Internal Medicine Department, CIBERFES (ISCIII), Hospital del Mar Medical Research Institute, Pompeu Fabra University, Barcelona, Spain., Cruz-Priego GA; Clinical Epidemiology Research Unit, Children's Hospital of Mexico, Federico Gomez - Faculty of Medicine, National Autonomous University of Mexico (UNAM), Mexico City, Mexico., Cavallo A; Investigaciones Reumatológicas y Osteológicas (IRO), Collaborating Centre WHO, Buenos Aires, Argentina., Cooper F; Royal Osteoporosis Society, Bath, UK., Grier J; Royal Osteoporosis Society, Bath, UK., Leckie C; McMaster University, Hamilton, ON, Canada., Montiel-Ojeda D; Clinical Epidemiology Research Unit, Children's Hospital of Mexico, Federico Gomez - Faculty of Medicine, National Autonomous University of Mexico (UNAM), Mexico City, Mexico., Papaioannou A; McMaster University, Hamilton, ON, Canada., Raskin N; Department of Health Services Research, Care & Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands., Yurquina L; AMPC, Hamilton, ON, Canada., Wall M; Research Institute of the McGill University Health Centre, Montreal, QC, Canada., Bruyère O; WHO Collaborating Center for Epidemiology of Musculoskeletal Health and Aging, Division of Public Health, Epidemiology and Health Economics, University of Liège, Liège, Belgium., Boonen A; Department of Health Services Research, Care & Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands., Dennison E; MRC Lifecourse Epidemiology Centre, University of Southampton, Southampton, UK., Harvey NC; MRC Lifecourse Epidemiology Centre, University of Southampton, Southampton, UK.; NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK., Kanis JA; Mary MacKillop Institute for Health Research, Australian Catholic University, Melbourne, Australia.; Centre for Metabolic Bone Diseases, University of Sheffield, Sheffield, UK., Kaux JF; Physical and Rehabilitation Medicine and Sport Traumatology Department, University Hospital of Liège, Liège, Belgium., Lewiecki EM; New Mexico Clinical Research & Osteoporosis Center, Albuquerque, NM, USA., Lopez-Borbon O; Research Institute for Life Sciences (NARILIS), Department of Biomedical Sciences, Faculty of Medicine, University of Namur, Namur, Belgium., Paskins Z; School of Medicine, Keele University, Stoke-On-Trent, UK.; Haywood Academic Rheumatology Centre, Midlands Partnership University NHS Foundation Trust, Stoke-On-Trent, UK., Reginster JY; WHO Collaborating Center for Epidemiology of Musculoskeletal Health and Aging, Division of Public Health, Epidemiology and Health Economics, University of Liège, Liège, Belgium., Silverman S; Research Institute for Life Sciences (NARILIS), Department of Biomedical Sciences, Faculty of Medicine, University of Namur, Namur, Belgium.; Cedars-Sinai Medical Center, Los Angeles, CA, USA., Hiligsmann M; Department of Health Services Research, Care & Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.
Jazyk:	angličtina
Zdroj:	Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA [Osteoporos Int] 2024 Mar; Vol. 35 (3), pp. 451-468. Date of Electronic Publication: 2023 Nov 13.
DOI:	10.1007/s00198-023-06955-9
Abstrakt:	The RICO study indicated that most patients would like to receive information regarding their fracture risk but that only a small majority have actually received it. Patients globally preferred a visual presentation of fracture risk and were interested in an online tool showing the risk. Purpose: The aim of the Risk Communication in Osteoporosis (RICO) study was to assess patients' preferences regarding fracture risk communication. Methods: To assess patients' preferences for fracture risk communication, structured interviews with women with osteoporosis or who were at risk for fracture were conducted in 11 sites around the world, namely in Argentina, Belgium, Canada at Hamilton and with participants from the Osteoporosis Canada Canadian Osteoporosis Patient Network (COPN), Japan, Mexico, Spain, the Netherlands, the UK, and the USA in California and Washington state. The interviews used to collect data were designed on the basis of a systematic review and a qualitative pilot study involving 26 participants at risk of fracture. Results: A total of 332 women (mean age 67.5 ± 8.0 years, 48% with a history of fracture) were included in the study. Although the participants considered it important to receive information about their fracture risk (mean importance of 6.2 ± 1.4 on a 7-point Likert scale), only 56% (i.e. 185/332) had already received such information. Globally, participants preferred a visual presentation with a traffic-light type of coloured graph of their FRAX® fracture risk probability, compared to a verbal or written presentation. Almost all participants considered it important to discuss their fracture risk and the consequences of fractures with their healthcare professionals in addition to receiving information in a printed format or access to an online website showing their fracture risk. Conclusions: There is a significant communication gap between healthcare professionals and patients when discussing osteoporosis fracture risk. The RICO study provides insight into preferred approaches to rectify this communication gap. (© 2023. The Author(s).)
Databáze:	MEDLINE
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