Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis.

Autor:	Rozi NRB; Department of Internal Medicine, Kulliyyah of Medicine, International Islamic University, Kuantan, Pahang, Malaysia., Bin Wan Ali WASR; Department of Internal Medicine, Kulliyyah of Medicine, International Islamic University, Kuantan, Pahang, Malaysia., Bin Draman CR; Department of Internal Medicine, Kulliyyah of Medicine, International Islamic University, Kuantan, Pahang, Malaysia., Pasi HB; Department of Community Health, Kulliyyah of Medicine, International Islamic University, Kuantan, Pahang, Malaysia., Rathor MY; Department of Internal Medicine, Kulliyyah of Medicine, International Islamic University, Kuantan, Pahang, Malaysia.
Jazyk:	angličtina
Zdroj:	Saudi journal of kidney diseases and transplantation : an official publication of the Saudi Center for Organ Transplantation, Saudi Arabia [Saudi J Kidney Dis Transpl] 2022 Sep 01; Vol. 33 (5), pp. 664-673. Date of Electronic Publication: 2023 Nov 07.
DOI:	10.4103/1319-2442.389426
Abstrakt:	The role of end-of-life care is fundamental for end-stage renal disease (ESRD) patients, who are known to have a high morbidity and mortality rate despite being on dialysis. This requires effective communication and shared decision-making. Thus, exploring patients' knowledge and perceptions is essential to improve the gaps in delivering end-of-life care. This study aimed to describe the knowledge and perceptions of end-of-life care among ESRD patients on hemodialysis (HD). This was a cross-sectional study involving 14 outpatient HD centers in Kuantan, Malaysia. Patients were recruited from March to June 2019. A validated questionnaire was delivered via interview-based surveys by the researcher or trained interviewers. The majority of the respondents had poor knowledge of the disease and end-of-life care. However, more than 70% of the respondents felt that it was important for them to be actively involved in medical decision-making, as well as being prepared and planning for death. End-of-life needs, which included management of symptoms and psychological, social, and spiritual support, were important to most respondents. Additionally, patients with higher educational backgrounds were observed to have higher scores for both knowledge and perceptions (P <0.05). The study found poor knowledge but acceptable perceptions among patients. This highlights the gaps in the current local approach in clinical practice to end-of-life care in ESRD. (Copyright © 2022 Copyright: © 2022 Saudi Journal of Kidney Diseases and Transplantation.)
Databáze:	MEDLINE
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