Optimizing Care for Autistic Patients in Health Care Settings: A Scoping Review and Call to Action.

Autor: Harris HK; Department of Pediatrics (HK Harris), Baylor College of Medicine and Meyer Center for Developmental Pediatrics, Texas Children's Hospital, Houston, Tex. Electronic address: holly.harris@bcm.edu., Weissman L; Division of Developmental Medicine (L Weissman and C Weitzman), Boston Children's Hospital and Harvard Medical School, Boston, Mass., Friedlaender EY; Department of Pediatrics (EY Friedlaender), Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa., Neumeyer AM; Lurie Center for Autism (AM Neumeyer), Massachusetts General Hospital and Harvard Medical School, Boston, Mass., Friedman AJ; Division of Developmental and Behavioral Pediatrics (AJ Friedman and S Krauss), Boston Medical Center, Boston, Mass., Spence SJ; Division of Neurology (SJ Spence), Boston Children's Hospital and Harvard Medical School, Boston, Mass., Rotman C; Medical Library (C Rotman), Boston Children's Hospital, Boston, Mass., Krauss S; Division of Developmental and Behavioral Pediatrics (AJ Friedman and S Krauss), Boston Medical Center, Boston, Mass., Broder-Fingert S; Department of Pediatrics (S Broder-Fingert), UMASS Chan Medical School, Worcester, Mass., Weitzman C; Division of Developmental Medicine (L Weissman and C Weitzman), Boston Children's Hospital and Harvard Medical School, Boston, Mass.
Jazyk: angličtina
Zdroj: Academic pediatrics [Acad Pediatr] 2024 Apr; Vol. 24 (3), pp. 394-407. Date of Electronic Publication: 2023 Nov 10.
DOI: 10.1016/j.acap.2023.11.006
Abstrakt: Objective: We conducted a scoping review of interventions designed to improve the health care experiences of autistic individuals and assessed the methodology and outcomes used to evaluate them.
Methods: Literature from January 2005 to October 2020 was searched using PubMed, Excerpta Medica dataBASE (EMBASE), Cumulated Index to Nursing and Allied Health Literature (CINAHL), PsycINFO as well as hand searching. Studies included described an intervention for autistic individuals in inpatient or outpatient settings and evaluated the intervention using standardized methodology. Results were exported to Covidence software. Ten reviewers completed abstract screening, full text review, and then systematic data extraction of the remaining articles. Two reviewers evaluated each article at each stage, with a third reviewer arbitrating differences.
Results: A total of 38 studies, including three randomized controlled trials (RCTs) were included. Twenty-six (68%) took place in dental, psychiatric, or procedural settings. Interventions primarily focused on visit preparation and comprehensive care plans or pathways (N = 29, 76%). The most frequent outcome was procedural compliance (N = 15), followed by intervention acceptability (N = 7) and parent satisfaction (N = 6). Two studies involved autistic individuals and caregivers in study design, and no studies assessed racial/ethnic diversity on intervention impact.
Conclusions: Well-designed evaluations of interventions to support autistic individuals in pediatric health care settings are limited. There is a need to conduct large multi-site intervention implementation studies.
Competing Interests: Declaration of Competing Interest This statement is to declare that the authors have no potential conflicts of interest relevant to this article.
(Copyright © 2024 Academic Pediatric Association. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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