Evaluating caregiver-clinician communication for tracheostomy placement in the neonatal intensive care unit: a qualitative inquiry.

Autor: Bushroe KM; Department of Pediatrics, Division of Newborn Medicine, St. Louis Children's Hospital and Washington University in St. Louis School of Medicine, St. Louis, MO, USA. kbushroe@wustl.edu., Crisp KD; College of Health and Human Sciences, Northern Illinois University, DeKalb, IL, USA.; Department of Surgery, Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO, USA., Politi MC; Department of Surgery, Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO, USA., Brennan SK; Department of Pediatrics, Division of Allergy and Pulmonary Medicine, St. Louis Children's Hospital and Washington University in St. Louis School of Medicine, St. Louis, MO, USA., Housten AJ; Department of Surgery, Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.
Jazyk: angličtina
Zdroj: Journal of perinatology : official journal of the California Perinatal Association [J Perinatol] 2024 Jul; Vol. 44 (7), pp. 963-969. Date of Electronic Publication: 2023 Oct 13.
DOI: 10.1038/s41372-023-01793-3
Abstrakt: Objective: Identify stakeholders' tracheostomy decision-making information priorities in the Neonatal Intensive Care Unit (NICU).
Study Design: English-speaking caregivers and clinicians who participated in NICU tracheostomy discussions between January 2017 and December 2021 were eligible. They reviewed a pediatric tracheostomy communication guide prior to meeting. Interviews focused on tracheostomy decision-making experiences, communication preferences, and guide perceptions. Interviews were recorded, transcribed, and analyzed using iterative inductive/deductive coding to inform thematic analysis.
Results: Ten caregivers and nine clinicians were interviewed. Caregivers were surprised by the severity of their child's diagnosis and the intensive home care required, but proceeded with tracheostomy because it was the only chance for survival. All recommended that tracheostomy information be introduced early and in phases. Inadequate communication limited caregivers' understanding of post-surgical care and discharge requirements. All felt a guide could standardize communication.
Conclusions: Caregivers seek detailed information regarding expectations after tracheostomy placement in the NICU and at home.
(© 2023. The Author(s), under exclusive licence to Springer Nature America, Inc.)
Databáze: MEDLINE
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