Brazilian version of the CHOP INTEND scale: cross-cultural adaptation and validation.

Autor:	Alves RMR; Instituto de Medicina Integral Professor Fernando Figueira, Pós-graduação em Saúde Integral, Recife PE, Brazil.; Hospital Otávio de Freitas, Departamento de Reabilitação, Recife PE, Brazil., Calado APM; Hospital Maria Lucinda/Rarus, Serviço de Doenças Raras, Recife PE, Brazil.; Universidade Federal de Pernambuco, Centro de Ciências da Saúde, Recife PE, Brazil., Van Der Linden V; Hospital Maria Lucinda/Rarus, Serviço de Doenças Raras, Recife PE, Brazil.; Universidade Federal de Pernambuco, Centro de Ciências da Saúde, Recife PE, Brazil., Bello MAFC; Universidade Federal de Pernambuco, Centro de Ciências da Saúde, Recife PE, Brazil.; Associação de Assistência à Criança Deficiente, Serviço de Fisioterapia, Recife PE, Brazil., Andrade LB; Instituto de Medicina Integral Professor Fernando Figueira, Pós-graduação em Saúde Integral, Recife PE, Brazil.
Jazyk:	angličtina
Zdroj:	Arquivos de neuro-psiquiatria [Arq Neuropsiquiatr] 2023 Sep; Vol. 81 (9), pp. 816-824. Date of Electronic Publication: 2023 Oct 04.
DOI:	10.1055/s-0043-1772832
Abstrakt:	Background: Spinal muscular atrophy (SMA) is a rare genetic disease that causes progressive muscle weakness and impacts motor function. The type I is the most severe presentation and affects infants before 6 months old. In addition, the instruments available for assessing motor function have limitations when applied to infants with neuromuscular diseases and significant muscle weakness. Objective: To translate, cross-culturally adapt, and validate the Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND) to Brazilian Portuguese. Methods: The present study comprised the translation, synthesis of translations, backtranslation, consolidation by a committee of experts, and test of the final version of the CHOP INTEND in 13 patients with SMA type I. We also assessed the content validity and reliability of the translated version. Results: The scale was translated considering semantic, structural, idiomatic, and cultural aspects. All agreement rates were > 0.8, the overall content validity index of the instrument was 0.98, and inter-rater reliability using the intraclass correlation coefficient was 0.998. Conclusion: The Brazilian version of the CHOP INTEND met semantic and technical equivalence criteria with the original version and was valid and reliable for patients with SMA type I. Competing Interests: The authors have no conflict of interest to declare. (Academia Brasileira de Neurologia. This is an open access article published by Thieme under the terms of the Creative Commons Attribution 4.0 International License, permitting copying and reproduction so long as the original work is given appropriate credit (https://creativecommons.org/licenses/by/4.0/).)
Databáze:	MEDLINE
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