What does the general public know about palliative care? A population-based survey.

Autor:	Matthys M; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium marjolein.matthys@ugent.be.; Department of Public Health and Primary Care, Ghent University, Ghent, Belgium., Chambaere K; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Public Health and Primary Care, Ghent University, Ghent, Belgium., Beernaert K; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Public Health and Primary Care, Ghent University, Ghent, Belgium., Cohen J; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Medicine & Chronic Care, Vrije Universiteit Brussel (VUB), Brussels, Belgium., Van Brussel L; Flanders Institute for Healthy Living, Brussels, Belgium., Deforche B; Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.; Movement and Nutrition for Health and Performance Research Group, Vrije Universiteit Brussel (VUB), Brussels, Belgium., Quintiens B; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Medicine & Chronic Care, Vrije Universiteit Brussel (VUB), Brussels, Belgium., Deliens L; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Public Health and Primary Care, Ghent University, Ghent, Belgium., Dhollander N; End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.; Department of Medicine & Chronic Care, Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Jazyk:	angličtina
Zdroj:	BMJ supportive & palliative care [BMJ Support Palliat Care] 2024 Aug 19; Vol. 14 (3), pp. 335-344. Date of Electronic Publication: 2024 Aug 19.
DOI:	10.1136/spcare-2023-004384
Abstrakt:	Objectives: The need for public education on palliative care has been widely argued for. To develop effective educational strategies, a stronger evidence base is needed on what exactly is known and unknown about palliative care as well as what the differences are between subgroups. Methods: We conducted a cross-sectional population-based survey. Mail questionnaires were sent to a random sample of 4400 citizens (aged ≥16 years) within 4 municipalities in Flanders, Belgium. The Palliative Care Knowledge Scale (PaCKS) was used to measure knowledge. Associations between knowledge and sociodemographics and various experiential factors were tested, as well as the congruence between actual and self-perceived knowledge scores. Results: Response was obtained from 2008 (45.6%) citizens. The mean PaCKS score was 7.87 (SD 3.41; range 0-13) with the highest proportion (84.7%) correctly answering that palliative care is not specifically for older adults and the lowest (32.1%) correctly answering that improving the ability to participate in daily life is a palliative care goal. Being aged between 30 and 59, non-religious, more highly educated, having professional healthcare experience and knowing palliative care through personal experience were significantly associated with higher knowledge, while sex and informal caregiving experience were not. 52.4% self-perceived their knowledge as lower than it actually was. Conclusions: While the general public seems to be familiar with some basic concepts of palliative care, several key aspects remain unknown. Educational strategies, with suggested potential for community-based and experience-based approaches, may need to focus specifically on these aspects and not just on the broader palliative care concept. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2024. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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