Roadmap to engagement: Bringing patient partners into cancer research and beyond.

Autor:	Kimminau KS; Department of Family and Community Medicine, University of Missouri-Columbia, Columbia, MO, USA., Jernigan C; University of Kansas Cancer Center, University of Kansas School of Medicine, Kansas City, KS, USA., Krebill H; Masonic Cancer Alliance, Fairway, KS, USA., Douglas S; Patient Advocacy and Engagement Talaris Therapeutics, Louisville, KY, USA., Peltzer J; University of Kansas School of Nursing, Kansas City, KS, USA., Hamilton-Reeves J; KU Department of Urology, University of Kansas Medical Center, Kansas City, KS, USA., Chen RC; Department of Radiation Oncology, University of Kansas Cancer Center, Kansas City, KS, USA., Jensen R; University of Kansas Cancer Center, University of Kansas School of Medicine, Kansas City, KS, USA.
Jazyk:	angličtina
Zdroj:	Journal of clinical and translational science [J Clin Transl Sci] 2023 Aug 02; Vol. 7 (1), pp. e178. Date of Electronic Publication: 2023 Aug 02 (Print Publication: 2023).
DOI:	10.1017/cts.2023.602
Abstrakt:	The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise. Competing Interests: The authors have no conflicts of interest to declare. (© The Author(s) 2023.)
Databáze:	MEDLINE
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