Integrating community voices in the research continuum: Perspectives on a consultation service.

Autor: Evans CD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Nanda JP; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Ouyang P; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Medicine, Baltimore, MD, USA., Bone L; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Medicine, Baltimore, MD, USA.; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.; The Johns Hopkins University School of Nursing, Baltimore, MD, USA., Byiringiro S; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Nursing, Baltimore, MD, USA., Lacanienta C; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Clark R; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Weston C; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA., Han HR; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Medicine, Baltimore, MD, USA.; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA., Terkowitz M; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Bates-Hopkins B; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA., Galiatsatos P; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Medicine, Baltimore, MD, USA., Xu AJ; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Nursing, Baltimore, MD, USA., Stevens S; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA., Himmelfarb CR; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.; Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.; The Johns Hopkins University School of Medicine, Baltimore, MD, USA.; The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.; The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Jazyk: angličtina
Zdroj: Journal of clinical and translational science [J Clin Transl Sci] 2023 Jul 28; Vol. 7 (1), pp. e177. Date of Electronic Publication: 2023 Jul 28 (Print Publication: 2023).
DOI: 10.1017/cts.2023.600
Abstrakt: The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
Competing Interests: The authors have no conflict of interest to declare.
(© The Author(s) 2023.)
Databáze: MEDLINE