The impact of clean intermittent catheterization on students and families in the school environment.

Autor: Bauer SB; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA.; Harvard Medical School, Boston, Massachusetts, USA., Choung K; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Sable P; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Dykeman BS; Institutional Centers for Clinical and Translational Research, Boston Children's Hospital, Boston, Massachusetts, USA., Venna A; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Shanahan M; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Sexton KE; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Price DE; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Hayes LC; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA.; Harvard Medical School, Boston, Massachusetts, USA., Tham RL; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA., Christensen S; Institutional Centers for Clinical and Translational Research, Boston Children's Hospital, Boston, Massachusetts, USA., Sullivan K; Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA.
Jazyk: angličtina
Zdroj: Neurourology and urodynamics [Neurourol Urodyn] 2023 Nov; Vol. 42 (8), pp. 1702-1711. Date of Electronic Publication: 2023 Aug 28.
DOI: 10.1002/nau.25271
Abstrakt: Introduction: Clean intermittent catheterization (CIC) is often used for bladder emptying in children with lower urinary tract dysfunction. Until recently, the emphasis in assessing the effects of CIC has been on preserving kidney function, reducing urinary tract infection, and achieving urinary continence. Few studies have investigated the impact of CIC on students and families in a school setting. This study sought to examine what students and caregivers experienced when CIC was required during the school day and how schools adjusted to a student needing to perform it.
Materials and Methods: A phenomenological approach utilizing semistructured interviews was performed to understand the impact of CIC on students. Purposeful sampling identified eligible families. A guide was developed from expert opinion validated by a pilot sample with feedback collated into a family/provider codesigned questionnaire. Interviews emphasized the impact and challenges students faced at school. Transcripts were coded using Dedoose software with emerging themes identified and a code book was created for closed coding that led to thematic analysis.
Results: A total of 40 families (52 caregivers and children > 12 years) were interviewed. Emergent themes included: Caregivers and students felt (1) school personnel were not always aware of nor prepared regarding the implications of CIC; (2) school bathrooms were often less than ideal (e.g., location, size, cleanliness, privacy, and availability); and (3) student participation in extracurricular activities was challenging.
Conclusions: This study identifies potential areas of intervention in meeting the needs of students who require CIC and the importance of having collaborative efforts of caregivers, health care providers, and school personnel in addressing and meeting CIC needs. Care coordination that involves consistent communication and careful planning between health care teams, school personnel, students, and caregivers can optimize a student's educational experience.
(© 2023 Wiley Periodicals LLC.)
Databáze: MEDLINE
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