Family Needs Assessment of Patients with Cerebral Palsy Attending Two Hospitals in Accra, Ghana.

Autor:	Aduful AK; Department of Family Medicine, Korle-Bu Teaching Hospital, Accra P.O. Box GP 4236, Ghana., Boamah-Mensah F; Princess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana., Nyarko MY; Princess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana., Neizer ML; Princess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana., Brew YN; Department of Child Health, Greater Accra Regional Hospital (GARH), Accra P.O. Box GP 473, Ghana., Williams LA; Department of Child Health, Korle-Bu Teaching Hospital, Accra P.O. Box GP 4236, Ghana., Calys-Tagoe BNL; Department of Community Health, University of Ghana Medical School, Accra P.O. Box GP 4236, Ghana., Ackun HKM; Department of Family Medicine, Duffus Health Center, Halifax, NS B3M 3Y7, Canada., Tette EMA; Princess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana.; Department of Community Health, University of Ghana Medical School, Accra P.O. Box GP 4236, Ghana.
Jazyk:	angličtina
Zdroj:	Children (Basel, Switzerland) [Children (Basel)] 2023 Jul 29; Vol. 10 (8). Date of Electronic Publication: 2023 Jul 29.
DOI:	10.3390/children10081313
Abstrakt:	Background: The family represents the most essential and supportive environment for children with cerebral palsy (CP). To improve children's outcomes, it is crucial to consider the needs of families in order to offer family-centered care, which tailors services to these needs. Objective: We conducted a needs assessment to identify the family needs of patients with CP attending two hospitals in Accra. Methods: The study was a cross-sectional study involving primary caregivers of children with CP attending neurodevelopmental clinics. Structured questionnaires were used to collect data spanning an 8-month period. The data were summarized, and statistical inference was made. Results: Service needs identified were childcare, counseling, support groups, financial assistance, and recreational facilities. Information needs included adult education, job training/employment opportunities, education, health and social programs, knowledge about child development, and management of behavioral and feeding/nutrition problems. Reducing extensive travel time was desirable to improve access to healthcare. With the increasing severity of symptoms came the need for improved accessibility in the home to reduce the child's hardship, as well as assistive devices, recreational facilities, and respite for the caregiver(s). Conclusion: Families of children with CP have information, service, and access needs related to their disease severity and family context.
Databáze:	MEDLINE
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