"It's Probably Just Hemorrhoids": A Qualitative Exploration of the Lived Experiences and Perceptions of Long-term Survivors of Early-Onset Colorectal Cancer.

Autor:	Rogers CR; Medical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin., Korous KM; Medical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin., De Vera MA; University of British Columbia, Vancouver, British Columbia, Canada., Shaukat A; New York University, Grossman School of Medicine, Department of Medicine, New York, New York., Brooks E; University of Utah School of Medicine, Department of Family & Preventive Medicine, Salt Lake City, Utah., Rifelj KK; Medical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin., Henley C; The Blue Hat Foundation, Chicago, Illinois., Johnson W; Patient-Centered Outcomes Research Institute, Chicago, Illinois., Rogers TN; University of Utah, Eccles School of Business, Sorenson Impact Center, Salt Lake City, Utah.
Jazyk:	angličtina
Zdroj:	Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology [Cancer Epidemiol Biomarkers Prev] 2023 Nov 01; Vol. 32 (11), pp. 1617-1624.
DOI:	10.1158/1055-9965.EPI-23-0443
Abstrakt:	Background: Colorectal cancer among adults aged <50 years [early-onset colorectal cancer (EOCRC)] is projected to be the leading cause of cancer-related death by 2030. Although evidence-based guidelines for colorectal cancer screening now recommend beginning screening at age 45, the needs of many at-risk young adults are potentially being overlooked. Unanswered questions also remain regarding the effects of EOCRC on quality-of-life and psychosocial outcomes. This qualitative study explored the lived experiences and perceptions of a sample of adult EOCRC survivors in the United States through one-on-one interviews. Methods: An EOCRC advocate survivor team member led 27 structured virtual interviews using a 10-question interview guide. Data were analyzed using a 9-step inductive approach. Results: Participants were geographically diverse. Most were women (66.6%) who self-identified as non-Hispanic White (85.2%). The mean age at interview was 40.19 ± 5.99; at diagnosis, 33.93 ± 5.90. Six overarching themes emerged: signs and symptoms, risk factors, system-level factors, quality of life, social support, and reflection. Conclusions: The specific needs of individuals in this younger population of patients with colorectal cancer should be considered during treatment and future interventions and throughout survivorship. Impact: While the reasons for the increasing incidence of EOCRC are currently unknown, the lived experiences and perceptions of EOCRC survivors noted in this study highlight specific needs of this population that can inform educational materials, comprehensive care, future research, and policy change. (©2023 American Association for Cancer Research.)
Databáze:	MEDLINE
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