Combined rehabilitation and palliative care interventions for patients with life-threatening diseases - PREGOAL. A scoping review of intervention programme goals.

Autor: Gärtner HS; National Institute of Public Health, University of Southern Denmark, Copenhagen, Denmark., Shabnam J; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark., Aagesen M; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark.; Occupational Science, User Perspectives and Community-based Interventions, Department of Public Health, University of Southern Denmark, Odense, Denmark., Guldin MB; Research Unit for General Practice, Public Health, Aarhus University, Aarhus, Denmark., Vind AB; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark., Marsaa K; North Zealand Hospital, University of Copenhagen, Kobenhavn, Denmark., Bergenholtz HM; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark.; Zealand University Hospital, Research Support Unit, Koge, Denmark., Graven V; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark., Sampedro Pilegaard M; DEFACTUM, Central Denmark Region, Aarhus, Denmark.; Department of Clinical Social Medicine and Rehabilitation, Regional Hospital Gødstrup, Herning, Denmark., Thuesen J; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark.; Occupational Science, User Perspectives and Community-based Interventions, Department of Public Health, University of Southern Denmark, Odense, Denmark.
Jazyk: angličtina
Zdroj: Disability and rehabilitation [Disabil Rehabil] 2024 Jul; Vol. 46 (14), pp. 2989-2998. Date of Electronic Publication: 2023 Aug 15.
DOI: 10.1080/09638288.2023.2246373
Abstrakt: Purpose: WHO recommends integrating rehabilitation into palliative care when providing services for people with life-threatening conditions. Recently, there has been increasing interest in exploring how rehabilitation and palliative care approaches could be combined. The aim of this study was to map and discuss the goals of intervention programmes that combine rehabilitation and palliative care.
Methods: A scoping review was performed. The electronic databases MEDLINE, EMBASE, and CINAHL were searched for papers published between January 2014 and September 2022. Papers were considered eligible if the participants in question had a life-threatening disease and if interventions included both rehabilitation and palliative care. All study types were included.
Results: Ten papers describing five interventions were included. Qualitative goals were narratively described, and quantitative goals were analysed according to the International Classification of Functioning, Disability and Health, and the Total Pain framework. Findings showed an overall focus on functioning and quality of life. Further analysis indicated an emphasis on physical and psychological dimensions. Social participation, and the social and spiritual dimensions were rarely evaluated.
Conclusion: This review indicates that goals relative to social participation, the social and spiritual dimensions, and the patient's own goals may well be overlooked as points of orientation for interventions.
Databáze: MEDLINE