Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.

Autor: Bray L; Edge Hill University, Ormskirk, UK. Brayl@edgehill.ac.uk., Carter B; Edge Hill University, Ormskirk, UK., Kiernan J; Edge Hill University and Alder Hey Children's Hospital, Liverpool, UK., Horowicz E; University of Liverpool, Liverpool, UK., Dixon K; Expert by Experience, Liverpool, UK., Ridley J; Edge Hill University and National Restraint Reduction Network, Ormskirk, UK., Robinson C; University of Strathclyde, Glasglow, UK., Simmons A; Alder Hey Children's Hospital, Liverpool, UK., Craske J; Alder Hey Children's Hospital, Liverpool, UK., Sinha S; Alder Hey Children's Hospital, Liverpool, UK., Morton L; University of Glasgow, Glasgow, UK., Nafria B; Sant Joan de Déu Children's Hospital, Barcelona, Spain., Forsner M; Umeå University, Umeå, Sweden., Rullander AC; Umeå University, Umeå, Sweden., Nilsson S; University of Gothenburg, Gothenburg, Sweden., Darcy L; University of Borås, Borås, Sweden., Karlsson K; University of Borås, Borås, Sweden., Hubbuck C; Great Ormond Street Hospital, London, UK., Brenner M; Trinity College, Dublin, Ireland., Spencer-Little S; Great Ormond Street Hospital, London, UK., Evans K; Barts Health NHS Trust, London, UK., Rowland A; The University of Salford, Salford, UK., Hilliard C; Children's Health Ireland (CHI) at Crumlin, Dublin, Ireland., Preston J; University of Liverpool, Liverpool, UK., Leroy PL; Maastricht University Medical Centre / Maastricht University, Maastricht, The Netherlands., Roland D; University Hospitals of Leicester NHS Trust and Leicester University, Leicester, UK., Booth L; University of Cumbria, Cumbria, UK., Davies J; Bangor University, Bangor, UK., Saron H; Edge Hill University, Ormskirk, UK., Mansson ME; Paediatric RN, HSC, Lund University, Lund, Sweden., Cox A; Midlands Partnership NHS Foundation Trust & Keele University, Keele, UK., Ford K; University of Tasmania and the Royal Hobart Hospital, Tasmani, Australia., Campbell S; University of Tasmania, Tasmania, Australia., Blamires J; Auckland University of Technology, Auckland, New Zealand., Dickinson A; Auckland University of Technology, Auckland, New Zealand., Neufeld M; Auckland University of Technology, Auckland, New Zealand., Peck B; Federation University, Victoria, Australia., de Avila M; São Paulo State University , São Paulo, Brazil., Feeg V; Molloy College in Rockville Centre, New York City, USA., Mediani HS; Universitas Padjadjaran, Bandung Ciry, Indonesia., Atout M; Philadelphia University, Amman, Jordan., Majamanda MD; University of Malawi, Kamuzu College of Nursing, Malawi, South Africa., North N; The Harry Crossley Children's Nursing Development Unit, University of Cape Town, Cape Town, South Africa., Chambers C; Dalhousie University, Halifax, Canada., Robichaud F; Ulluriaq, Ungava Tulattavik Health Center and UQAM UQO, Québec, Canada.
Jazyk: angličtina
Zdroj: European journal of pediatrics [Eur J Pediatr] 2023 Oct; Vol. 182 (10), pp. 4707-4721. Date of Electronic Publication: 2023 Aug 11.
DOI: 10.1007/s00431-023-05131-9
Abstrakt: Children continue to experience harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. The international ISupport collaboration aimed to develop standards to outline and explain good procedural practice and the rights of children within the context of a clinical procedure. The rights-based standards for children undergoing tests, treatments, investigations, examinations and interventions were developed using an iterative, multi-phased, multi-method and multi-stakeholder consensus building approach. This consensus approach used a range of online and face to face methods across three phases to ensure ongoing engagement with multiple stakeholders. The views and perspectives of 203 children and young people, 78 parents and 418 multi-disciplinary professionals gathered over a two year period (2020-2022) informed the development of international rights-based standards for the care of children having tests, treatments, examinations and interventions. The standards are the first to reach international multi-stakeholder consensus on definitions of supportive and restraining holds.    Conclusion: This is the first study of its kind which outlines international rights-based procedural care standards from multi-stakeholder perspectives. The standards offer health professionals and educators clear evidence-based tools to support discussions and practice changes to challenge prevailing assumptions about holding or restraining children and instead encourage a focus on the interests and rights of the child. What is Known: • Children continue to experience short and long-term harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. • Professionals report uncertainty and tensions in applying evidence-based practice to children's procedural care. What is New: • This is the first study of its kind which has developed international rights-based procedural care standards from multi-stakeholder perspectives. • The standards are the first to reach international multi-stakeholder consensus on definitions of supportive and restraining holds.
(© 2023. The Author(s).)
Databáze: MEDLINE
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