How does a chronic wound change a patient's social life? A European survey on social support and social participation.

Autor: Janke TM; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany., Kozon V; Society Wound Diagnosis and Wound Management Austria, Vienna Medical Academy, Vienna, Austria., Barysch M; Department of Dermatology, University Hospital Zurich, Zürich, Switzerland., Valiukeviciene S; Department of Skin and Venereal Diseases, Lithuanian University of Health Sciences, Hospital of Lithuanian University of Health Sciences Kauno Klinikos, Kaunas, Lithuania., Rackauskaite L; Department of Skin and Venereal Diseases, Lithuanian University of Health Sciences, Hospital of Lithuanian University of Health Sciences Kauno Klinikos, Kaunas, Lithuania., Reich A; Department of Dermatology, Institute of Medical Sciences, Medical College of Rzeszow University, Rzeszów, Poland., Stępień K; Department of Dermatology, Institute of Medical Sciences, Medical College of Rzeszow University, Rzeszów, Poland., Jankechova M; Faculty of Health and Social Work St. Ladislaw in Nove Zamky, University of Health and Social Work St. Elisabeth in Bratislava, Bratislava, Slovakia., van Montfrans C; Department of Dermatology, Erasmus Medical Center Rotterdam, Rotterdam, The Netherlands., Amesz S; Department of Health Sciences, Section of Nursing Science, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Conde Montero E; Dermatology, Hospital Universitario Infanta Leonor y Virgen de la Torre, Madrid, Spain., Augustin M; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany., Blome C; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Jazyk: angličtina
Zdroj: International wound journal [Int Wound J] 2023 Dec; Vol. 20 (10), pp. 4138-4150. Date of Electronic Publication: 2023 Jul 20.
DOI: 10.1111/iwj.14309
Abstrakt: Chronic wounds can severely limit patient's social life. This cross-sectional study investigated quantitatively social support of patients with chronic wounds, its association with health-related quality of life as well as qualitatively changes in social participation of these patients. Overall, 263 patients from seven countries participated. The most frequent wound class was leg ulcer (49.2%). Results revealed generally high levels of social support (mean global score: 5.5) as measured with the Multidimensional Scale of Perceived Social Support. However, individuals differed considerably (range 1.0-7.0). All dimensions of social support differed by patients' family and living situations (p < 0.001 to p = 0.040) and were positively correlated with generic health-related quality of life (r = 0.136-0.172). Having children, living with others and being in a relationship were significant predictors of having higher global social support. Patients reported great support from family members. Many participants reported no changes in relationships with friends. Wound care managers took an important role and provided additional emotional support. Patients reported a range of discontinued activities. Despite the high overall level of social support, inter-individual differences should be acknowledged. The importance of family carers should be acknowledged to be able to reduce caregiver burden and to ensure high-qualitative wound care.
(© 2023 The Authors. International Wound Journal published by Medicalhelplines.com Inc and John Wiley & Sons Ltd.)
Databáze: MEDLINE
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