Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.

Autor: Weiss EM; From the Department of Pediatrics (EM Weiss, JM Smith, SA Kraft), University of Washington School of Medicine, Seattle, Wash; Treuman Katz Center for Pediatric Bioethics and Palliative Care (EM Weiss, KM Porter, and SA Kraft), Seattle Children's Research Institute, Seattle, Wash. Electronic address: emweiss@uw.edu., Porter KM; Treuman Katz Center for Pediatric Bioethics and Palliative Care (EM Weiss, KM Porter, and SA Kraft), Seattle Children's Research Institute, Seattle, Wash., Sullivan TR; Stanford University (TR Sullivan), Stanford, Calif., Sotelo Guerra LJ; Research Integration Hub (LJ Sotelo Guerra, L Baker, and JM Smith), Seattle Children's Research Institute, Seattle, Wash., Anderson EE; Neiswanger Institute for Bioethics (EE Anderson), Loyola University Chicago Stritch School of Medicine, Maywood, Ill., Garrison NA; Institute for Society and Genetics (NA Garrison), University of California Los Angeles; Institute for Precision Health (NA Garrison), David Geffen School of Medicine, University of California Los Angeles; and Division of General Internal Medicine and Health Services Research (NA Garrison), Department of Medicine, David Geffen School of Medicine, University of California Los Angeles., Baker L; Research Integration Hub (LJ Sotelo Guerra, L Baker, and JM Smith), Seattle Children's Research Institute, Seattle, Wash., Smith JM; From the Department of Pediatrics (EM Weiss, JM Smith, SA Kraft), University of Washington School of Medicine, Seattle, Wash; Research Integration Hub (LJ Sotelo Guerra, L Baker, and JM Smith), Seattle Children's Research Institute, Seattle, Wash., Kraft SA; From the Department of Pediatrics (EM Weiss, JM Smith, SA Kraft), University of Washington School of Medicine, Seattle, Wash; Treuman Katz Center for Pediatric Bioethics and Palliative Care (EM Weiss, KM Porter, and SA Kraft), Seattle Children's Research Institute, Seattle, Wash.
Jazyk: angličtina
Zdroj: Academic pediatrics [Acad Pediatr] 2024 Mar; Vol. 24 (2), pp. 318-329. Date of Electronic Publication: 2023 Jul 11.
DOI: 10.1016/j.acap.2023.06.032
Abstrakt: Background and Objectives: Difficulty recruiting individuals from minoritized and underserved populations for clinical research is well documented and has health equity implications. Previously, we reported findings from interviews with research staff about pediatric research recruitment processes. Respondents raised equity concerns related to recruitment and enrollment of participants from minoritized, low resourced, and underserved populations. We therefore decided to perform a secondary coding of the transcripts to examine equity-related issues systematically.
Methods: We conducted a process of secondary coding and analysis of interviews with research staff involved in recruitment for pediatric clinical research. Through consensus we identified codes relevant to equity and developed a conceptual framework including 5 stages of research.
Results: We analyzed 28 interviews and coded equity-related items. We report 6 implications of our findings. First, inequitable access to clinical care is an upstream barrier to research participation. Second, there is a need to increase research opportunities where underserved and under-represented populations receive care. Third, increasing research team diversity can build trust with patients and families, but teams must ensure adequate support of all research team members. Fourth, issues related to consent processes raise institutional-level opportunities for improvement. Fifth, there are numerous study procedure-related barriers to participation. Sixth, our analysis illustrates that individuals who speak languages other than English face barriers across multiple stages.
Conclusions: Research staff members identified equity-related concerns and recommended potential solutions across 5 stages of the research process, which may guide those endeavoring to improve research recruitment for pediatric patients from minoritized and underserved populations.
Competing Interests: Declaration of Competing Interest The authors have no conflicts of interest relevant to this article to disclose.
(Copyright © 2023 Academic Pediatric Association. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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