Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care.

Autor:	Häger Tibell L; The Department of Health Care Science/Palliative Research Centre, Marie Cederschiöld University, Stockholm, Sweden.; Tema Cancer, BES: Breast-Endocrine Tumours and Sarcoma, Karolinska University Hospital, Stockholm, Sweden., Årestedt K; Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden.; Department of Research, Region Kalmar County, Kalmar, Sweden., Holm M; The Department of Health Care Science/Palliative Research Centre, Marie Cederschiöld University, Stockholm, Sweden.; Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden., Wallin V; The Department of Health Care Science/Palliative Research Centre, Marie Cederschiöld University, Stockholm, Sweden., Steineck G; Department of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden.; Division of Clinical Cancer Epidemiology, Sahlgrenska University Hospital, Gothenburg, Sweden., Hudson P; Centre for Palliative Care, St Vincent´s Hospital and The University of Melbourne, Melbourne, Australia.; Vrije University Brussels, Brussels, Belgium., Kreicbergs U; The Department of Health Care Science/Palliative Research Centre, Marie Cederschiöld University, Stockholm, Sweden.; Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden., Alvariza A; Research and Development-Unit/Palliative Care, Stockholms Sjukhem, Stockholm, Sweden.
Jazyk:	angličtina
Zdroj:	Death studies [Death Stud] 2024; Vol. 48 (4), pp. 407-416. Date of Electronic Publication: 2023 Jul 13.
DOI:	10.1080/07481187.2023.2231388
Abstrakt:	The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.
Databáze:	MEDLINE
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