The experiences and needs of unpaid family caregivers for persons living with dementia in rural settings: A qualitative systematic review.

Autor: Campbell-Enns HJ; Department of Psychology, Canadian Mennonite University, Winnipeg, Manitoba, Canada., Bornstein S; Department of Political Science, Memorial University, St. John's, Newfoundland, Canada.; Faculty of Medicine, Memorial University, St. John's, Newfoundland, Canada., Hutchings VMM; Aging Research Centre-NL, Grenfell Campus, Memorial University, Corner Brook, Newfoundland and Labrador, St. John's, Canada., Janzen M; School of Public Policy and Administration, Carleton University, Ottawa, Ontario, Canada., Kampen M; Centre for Transnational Mennonite Studies, University of Winnipeg, Winnipeg, Manitoba, Canada., O'Brien K; St. Joseph's Care Group, Thunder Bay, Ontario, Canada.; Western Health, Corner Brook, Newfoundland and Labrador, Canada., Rieger KL; School of Nursing, Trinity Western University, Langley, British Columbia, Canada., Stewart T; Department of Community Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada., Zendel BR; Faculty of Medicine, Memorial University, St. John's, Newfoundland, Canada.; Aging Research Centre-NL, Grenfell Campus, Memorial University, Corner Brook, Newfoundland and Labrador, St. John's, Canada., Doupe MB; Department of Community Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.
Jazyk: angličtina
Zdroj: PloS one [PLoS One] 2023 Jun 14; Vol. 18 (6), pp. e0286548. Date of Electronic Publication: 2023 Jun 14 (Print Publication: 2023).
DOI: 10.1371/journal.pone.0286548
Abstrakt: Purpose: Unpaid family caregivers provide extensive support for community-dwelling persons living with dementia, impacting family caregivers' health and wellbeing. Further, unpaid family caregiving in rural settings has additional challenges because of lower access to services. This systematic review examines qualitative evidence to summarize the experiences and needs of rural unpaid family caregivers of persons living with dementia.
Methods: CINAHL, SCOPUS, EMBASE, Web of Science, PsychINFO, ProQuest, and Medline were searched for articles investigating the experience and needs of rural family caregivers of persons living with dementia. Eligibility criteria were: 1) original qualitative research; 2) written in the English language; 3) focused on the perspectives of caregivers of community-dwelling persons with dementia; 4) focused on rural settings. Study findings were extracted from each article and a meta-aggregate process was used to synthesize the findings.
Findings: Of the 510 articles screened, 36 studies were included in this review. Studies were of moderate to high quality and produced 245 findings that were analyzed to produce three synthesized findings: 1) the challenge of dementia care; 2) rural limitations; 3) rural opportunities.
Conclusions: Rurality is perceived as a limitation for family caregivers in relation to the scope of services provided but can be perceived as a benefit when caregivers experience trustworthy and helpful social networks in rural settings. Implications for practice include establishing and empowering community groups to partner in the provision of care. Further research must be conducted to better understand the strengths and limitations of rurality on caregiving.
Competing Interests: The authors have declared that no completing interests exist.
(Copyright: © 2023 Campbell-Enns et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
Databáze: MEDLINE
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