Rethinking systemic ableism: A response to Zagouras, Ellick, and Aulisio.

Autor:	Andrews EE; VA Texas Valley Coastal Bend Health Care System, Harlingen, TX, USA.; University of Texas at Austin Dell Medical School, Austin, TX, USA., Ayers KB; University of Cincinnati College of Medicine, Cincinnati, OH, USA.; Cincinnati Children's Hospital Medical Center Division of Developmental and Behavioral Pediatrics, Cincinnati, OH, USA., Stramondo JA; San Diego State University, Department of Philosophy and Institute for Ethics and Public Affairs, San Diego, CA, USA., Powell RM; Stetson University College of Law, Gulfport, FL, USA.; Lurie Institute for Disability Policy, Brandeis University, Waltham, MA, USA.
Jazyk:	angličtina
Zdroj:	Clinical ethics [Clin Ethics] 2023 Mar; Vol. 18 (1), pp. 7-12. Date of Electronic Publication: 2022 Apr 20.
DOI:	10.1177/14777509221094472
Abstrakt:	Introduction: This article is a response to Zagouras, Ellick, and Aulisio who presented a case study justifying the questioning of the capacity and autonomy of a young woman with a physical disability who was pregnant and facing coercive pressure to terminate. Case Description: Julia is described as a 26-year-old woman with a neurological disability that requires her to receive assistance with activities of daily living. She was described as living with her parents who provided her with personal care assistance. Julia became pregnant and her parents wished her to terminate because they did not want to care for her child in addition to her. In fact, Julia's parents threatened her with institutionalization if she did not elect to terminate the pregnancy. Her health care team questioned her decision-making capacity based on her alleged "mental age" and experiences of being sheltered and excluded. The health care team used directive tactics to convince Julia to terminate the pregnancy, which describe as both an ethical and feminist intervention. Discussion: The current authors take issue with the case analysis provided by and argue that they neglected to account for numerous instances of systemic ableism that adversely affected Julia, demonstrated prejudicial and judgmental attitudes toward pregnancy and disability, inappropriately questioned her decision-making capacity by infantilizing her, misconstrued the feminist concept of relational autonomy, and colluded with coercive interference from family members. This is a classic example of discriminatory and culturally incompetent reproductive health care for a disabled woman. Competing Interests: Declaration of conflicting interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze:	MEDLINE
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