Current management of bowel failure due to Crohn's disease in Spain: Results of a GETECCU survey.

Autor:	Suárez Ferrer C; Servicio de Gastroenterología, Hospital Universitario La Paz, Madrid, España; Hospital La Paz Institute for Health Research (IdiPaz), Madrid, España. Electronic address: cristinajsuarezferrer@gmail.com., Martín-Arranz MD; Servicio de Gastroenterología, Hospital Universitario La Paz, Madrid, España; Hospital La Paz Institute for Health Research (IdiPaz), Madrid, España., Martín-Arranz E; Servicio de Gastroenterología, Hospital Universitario La Paz, Madrid, España; Hospital La Paz Institute for Health Research (IdiPaz), Madrid, España., Rodríguez Morata F; Hospital Universitario de Bellvitge, L'Hospitalet de Llobregat, Barcelona, España., López García A; Hospital Clínico Universitario San Carlos, Madrid, España., Benítez Cantero JM; Hospital Universitario Reina Sofía, Madrid, España., Mesonero Gismero F; Hospital Universitario Ramón y Cajal, Madrid, España., Barreiro-de Acosta M; Hospital Universitario de Santiago de Compostela, Santiago de Compostela, La Coruña, España.
Jazyk:	English; Spanish; Castilian
Zdroj:	Gastroenterologia y hepatologia [Gastroenterol Hepatol] 2023 Jun-Jul; Vol. 46 (6), pp. 439-445. Date of Electronic Publication: 2022 Oct 29.
DOI:	10.1016/j.gastrohep.2022.10.008
Abstrakt:	Introduction: Intestinal failure is a rare pathology which requires knowledge and highly specialized multidisciplinary management. Crohn's disease (CD) being one of the most frequent causes in adults. Material and Methods: Survey format study carried out within the GETECCU group, included closed format questions about the diagnosis, management and current knowledge of intestinal failure in CD. Results: Forty-nine doctors participated, belonging to different Spanish centers (19 cities). It was considered that a patient suffered from intestinal failure, in 67.3% (33/49 surveyed) when there was a disorder malabsorptive associated regardless of the intestinal length resected, with surgeries resective ileal repeated (40.8%, 20/49), the most frequent cause. It highlights frequent ignorance about the pathology (24.5%) did not know if there were patients in their center and also 40% did not know the pharmacological treatment. A total of 228 patients were registered for follow-up due to intestinal failure of any aetiology, 89 patients (39.5%) were identified with CD. Regarding the therapeutic management of patients with CD and intestinal failure (72.5%) were receiving total parenteral nutrition (NTP) and 24 patients (27%) with teduglutide. Regarding the response to the drug: 37.5% had no response to teduglutide, 37.5% partial response (reduce NTP) and 25% good response (withdrawal of home NTP). In questions related to knowledge about intestinal failure, it was considered limited (53.1%) or very limited (12.2%) by the surveyed. Conclusion: It is necessary to carry out a combined management of intestinal failure and CD in the context of a multidisciplinary approach. (Copyright © 2022 Elsevier España, S.L.U. All rights reserved.)
Databáze:	MEDLINE
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