Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study.

Autor:	Lester EG; The Center for Health Outcomes and Interdisciplinary Research (CHOIR), Massachusetts General Hospital, Boston, MA, United States of America.; Harvard Medical School, Boston, MA, United States of America., Fishbein NS; The Center for Health Outcomes and Interdisciplinary Research (CHOIR), Massachusetts General Hospital, Boston, MA, United States of America., Peterson A; The Center for Health Outcomes and Interdisciplinary Research (CHOIR), Massachusetts General Hospital, Boston, MA, United States of America., Vranceanu AM; The Center for Health Outcomes and Interdisciplinary Research (CHOIR), Massachusetts General Hospital, Boston, MA, United States of America.; Harvard Medical School, Boston, MA, United States of America.
Jazyk:	angličtina
Zdroj:	PEC innovation [PEC Innov] 2022 Aug 20; Vol. 1, pp. 100076. Date of Electronic Publication: 2022 Aug 20 (Print Publication: 2022).
DOI:	10.1016/j.pecinn.2022.100076
Abstrakt:	Objectives: We aimed to test early feasibility, acceptability, and signals of improvement after the 8-week individually delivered asynchronous, web-based mind-body program (NF-Web) modeled after the synchronous group-based live video program (Relaxation Response Resiliency Program for NF; 3RP-NF). Methods: Two cohorts (cohort 1 n = 14, cohort 2 n = 14) completed baseline and posttest (feasibility markers, t- tests). Results: Enrolled participants ( N = 28; 80% of those eligible) completed baseline (N = 28; 100% of sample) and posttests ( N = 25; 89.3%). Video lesson (58.0%) and homework (70.9%) completion were fair to good. Satisfaction ( M = 8.85/10; SD = 2.35), credibility ( M = 7.07/10; SD = 1.44), and expectancy ( M = 6.68/10; SD = 2.10) were good to excellent. Participation was associated with statistically significant pre-to-post positive changes in quality of life (QoL; Physical, Psychological, Social, and Environmental,; p < 0.05) and emotional distress (depression, anxiety, and stress; p < 0.05). Pain intensity and interference did not improve significantly ( p > 0.05) after participation. Conclusions: NF-Web demonstrates initial feasibility, acceptability, and signals of improvement. Results support future trials to ascertain efficacy. Innovation: Web-based programs may be valuable for individuals with rare illness who prefer to learn skills on their own timeline, have barriers to live video participation, and who also have apprehensions about interacting with others during treatment. (© 2022 The Authors.)
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu