Parent Quality of Life scale in Type 1 Diabetes: a scale development and validation study.

Autor: Binay Yaz Ş; Department of Pediatric Nursing, Faculty of Health Sciences, Izmir Bakırçay University, Izmir, Turkey. seydabinay80@gmail.com.; Faculty of Health Sciences, Nursing Department, Izmir Bakırçay University, Menemen/Seyrek Izmir, 35665, Turkey. seydabinay80@gmail.com., Çinar D; Department of Oncology Nursing, Faculty of Health Sciences, Izmir Bakırçay University, Izmir, Turkey.
Jazyk: angličtina
Zdroj: European journal of pediatrics [Eur J Pediatr] 2023 Aug; Vol. 182 (8), pp. 3491-3499. Date of Electronic Publication: 2023 May 15.
DOI: 10.1007/s00431-023-05023-y
Abstrakt: The study aimed to develop and evaluate the psychometric properties of the Parental Quality of Life Scale in Type 1 Diabetes for parents. This research was a methodological study. The data of the study were collected between May and July 2021. The study included 201 parents who have a child with type 1 diabetes. Descriptive statistics, Cronbach's alpha, item-total score analysis, and factor analysis were used to evaluate the research data. In line with the suggestions of the experts, a total of 20 items were removed from the scale and a 12-item scale was created. The scale consists of 12 items and 2 sub-dimensions and shows 62.7% of the total variance. The Cronbach's alpha value of the scale was found to be 0.91 and its sub-dimensions were more significant than 0.85. According to both explanatory factor analysis and confirmatory factor analysis, all factor loads were more significant than 0.60.  Conclusion: The Parental Quality of Life Scale in Type 1 Diabetes was found to be valid and reliable. The scale can be used as a measurement tool in experimental or qualitative studies to be conducted on children with type 1 diabetes and their families. It is recommended to adapt the scale's psychometric properties to different cultures. What is Known: • The quality of life of parents who have a child with type 1 diabetes may be affected due to the burden of care for the disease. Parents' low quality of life can negatively affect pediatric patients' health.. • There is no measurement tool in the literature that directly measures the quality of life of parents who have a child with type 1 diabetes, whose validity and reliability studies have been conducted. What is New: • A measurement tool was developed to evaluate the quality of life of parents with a child with type 1 diabetes. • This measurement tool is valid and reliable.
(© 2023. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.)
Databáze: MEDLINE
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje