Patients' and Healthcare Professionals' Perspectives on Better Use of Patient-Reported Outcome Measures in Head and Neck Cancer.

Autor: de Jel DVC; Department of Head and Neck Oncology and Surgery, Netherlands Cancer Institute/Antoni van Leeuwenhoek, The Netherlands; Dutch Institute for Clinical Auditing, Scientific Bureau, The Netherlands; Department of Oral and Maxillofacial Surgery, Amsterdam University Medical Center, University of Amsterdam, The Netherlands. Electronic address: d.d.jel@nki.nl., Young-Afat DA; Department of Plastic, Reconstructive and Hand Surgery, Amsterdam UMC, The Netherlands., Ooms-Renckens MM; Department of Dental, Oral, and Maxillo-facial Surgery, Medisch Spectrum Twente/Ziekenhuisgroep Twente, The Netherlands., Smeele LE; Department of Head and Neck Oncology and Surgery, Netherlands Cancer Institute/Antoni van Leeuwenhoek, The Netherlands; Department of Oral and Maxillofacial Surgery, Amsterdam University Medical Center, University of Amsterdam, The Netherlands., Rakhorst HA; Department of Plastic, Reconstructive, and Hand Surgery, Medisch Spectrum Twente/Ziekenhuisgroep Twente, The Netherlands.
Jazyk: angličtina
Zdroj: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2023 Aug; Vol. 26 (8), pp. 1210-1216. Date of Electronic Publication: 2023 May 08.
DOI: 10.1016/j.jval.2023.04.009
Abstrakt: Objectives: Patients with head and neck cancer (HNC) are often highly affected by disease and treatment, resulting in impaired physical functioning and quality of life. Therefore, evaluation of patients' psychosocial and functional outcomes can be facilitated by patient-reported outcome measures (PROMs). By providing the patients' own perspectives, PROMs are crucial to improving patient-centered care. This study aimed to improve understanding of the perceived value of PROMs in HNC care and how to optimize their clinical value based on patients' and multidisciplinary healthcare professionals' (HCPs) perspectives.
Methods: Population-based surveys among patients with HNC through their patient association and among HCPs nationwide through the Dutch Head and Neck Audit.
Results: A total of 54 patients and 40 multidisciplinary HCPs from all 14 nationwide HNC centers (100%) responded. For patients, the most important element of patient-reported outcome collection systems was including a call to action for those with worse-than-average scores (28%), whereas clinicians found discussing scores during clinical visits the most important (39%). Although 16% of clinicians found short completion time the most important element, none of the patients selected completion time as most important. Additionally, 17% of patients stated completion time was not an issue, provided clinicians would use the outcomes for clinical purposes.
Conclusions: Although patients and clinicians acknowledged the value of patient-reported outcomes, patients would like to be more involved in the clinical implications of their outcomes. Enhancing patients' involvement by a call to action and providing feedback on their scores during outpatient clinic visits may improve the clinical value of PROMs.
(Copyright © 2023. Published by Elsevier Inc.)
Databáze: MEDLINE
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