Development of a novel shared decision making aid for primary immunodeficiency diseases.

Autor: Tzivelekis S; Takeda, 650 East Kendall Street, Cambridge, MA 02142, USA., Orange J; Columbia University Irving Medical Center, 632 W168th Street, New York, NY 10032, USA., Poulos C; RTI Health Solutions, 3040 Cornwallis Road, Research Triangle Park, Durham, NC 27709, USA., Meckley LM; Takeda, 650 East Kendall Street, Cambridge, MA 02142, USA., Peay H; RTI International, 3040 Cornwallis Road, Research Triangle Park, Durham, NC 27709, USA., Sutphin J; Duke Clinical Research Institute, Duke University, 200 Morris Street, Durham NC 27705-3976, USA.; RTI Health Solutions, 3040 Cornwallis Road, Research Triangle Park, Durham, NC 27709, USA., Hernandez-Trujillo VP; Allergy & Immunology Care Center of South Florida, 16371 NW 67th Ave, Miami Lakes, FL 33014, USA., Wasserman RL; Allergy Partners of North Texas, Suite B-332, 7777 Forest Lane, Dallas, TX 75230, USA.
Jazyk: angličtina
Zdroj: Immunotherapy [Immunotherapy] 2023 Jun; Vol. 15 (9), pp. 647-656. Date of Electronic Publication: 2023 May 09.
DOI: 10.2217/imt-2022-0193
Abstrakt: Aim: To describe development of a shared decision making (SDM) aid in treating primary immunodeficiency diseases (PID) with immunoglobulin replacement therapy (IGRT). Materials & methods: Expert engagement and qualitative formative research informed development. IGRT administration features were prioritized using object-case best-worst scaling (BWS) methodology. The aid was assessed by US adults self-reporting PID and revised following interviews/mock treatment-choice discussions with immunologists. Results: Patients participating in interviews (n = 19) and mock treatment-choice discussions (n = 5) deemed the aid useful/accessible and supported the utility of BWS, with content and BWS exercises refined following participant feedback. Conclusion: Formative research led to an improved SDM aid/BWS exercise, and illustrated how the aid may improve treatment decision making. The aid may help less-experienced patients and facilitate efficient SDM.
Databáze: MEDLINE
Externí odkaz: