Cardiology Care and Loss to Follow-Up Among Adults With Congenital Heart Defects in CH STRONG.

Autor: Andrews JG; Department of Pediatrics, University of Arizona, Tucson, Arizona. Electronic address: Jandrews@peds.arizona.edu., Strah D; Department of Pediatrics, University of Arizona, Tucson, Arizona., Downing KF; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia., Kern MC; School of Medicine, University of Arizona, Tucson, Arizona., Oster ME; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia; Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, Georgia., Seckeler MD; Department of Pediatrics, University of Arizona, Tucson, Arizona., Goudie A; Department of Epidemiology, University of Arkansas for Medical Sciences, Little Rock, Arkansas., Nembhard WN; Department of Epidemiology, University of Arkansas for Medical Sciences, Little Rock, Arkansas., Farr SL; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia., Klewer SE; Department of Pediatrics, University of Arizona, Tucson, Arizona.
Jazyk: angličtina
Zdroj: The American journal of cardiology [Am J Cardiol] 2023 Jun 15; Vol. 197, pp. 42-45. Date of Electronic Publication: 2023 May 04.
DOI: 10.1016/j.amjcard.2023.04.004
Abstrakt: Many of the estimated 1.4 million adults with congenital heart defects (CHDs) in the United States are lost to follow-up (LTF) despite recommendations for ongoing cardiology care. Using 2016 to 2019 CH STRONG (Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG) data, we describe cardiac care among community-based adults with CHD, born in 1980 to 1997, identified through state birth defects registries. Our estimates of LTF were standardized to the CH STRONG eligible population and likely more generalizable to adults with CHD than clinic-based data. Half of our sample were LTF and more than 45% had not received cardiology care in over 5 years. Of those who received care, only 1 in 3 saw an adult CHD physician at their last encounter. Not knowing they needed to see a cardiologist, being told they no longer needed cardiology care, and feeling "well" were the top reasons for LTF, and only half of respondents report doctors discussing the need for cardiac follow-up.
Competing Interests: Declaration of Competing Interest The authors have no conflicts of interest to declare.
(Copyright © 2023 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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