Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model.

Autor: Morrell MA; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA., Willis TR; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA., Brown DR; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA., O'Brian CA; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA., Post SL; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA., Woloschak GE; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA., Bonini MG; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA., Paunesku T; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA., Popovic J; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA., Manning TM; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA., Henley C; Blue Hat Foundation, Chicago, USA., Girotti J; Department of Medical Education, University of Illinois Chicago College of Medicine, Chicago, USA., Rogers R; Community and patient advocate, Chicago, IL, USA., Velásquez C; Alivio Medical Center, Chicago, USA., López J; Puerto Rican Cultural Center, Chicago, USA., Glenn J; Women On Top of Their Game Foundation, Chicago, USA., Simon MA; Feinberg School of Medicine, Northwestern University, Center for Health Equity Transformation, Chicago, USA. m-simon2@northwestern.edu.; Feinberg School of Medicine, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, Chicago, USA. m-simon2@northwestern.edu.
Jazyk: angličtina
Zdroj: Cancer causes & control : CCC [Cancer Causes Control] 2023 Jul; Vol. 34 (7), pp. 621-624. Date of Electronic Publication: 2023 Apr 21.
DOI: 10.1007/s10552-023-01699-7
Abstrakt: Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University's Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR.
(© 2023. The Author(s), under exclusive licence to Springer Nature Switzerland AG.)
Databáze: MEDLINE
Externí odkaz: