Development and preliminary validation of a health-related family quality of life instrument.

Autor:	Radina ME; Department of Family Science and Social Work, Miami University, Oxford, Ohio, USA.; Vanderbilt University School of Nursing, Nashville, Tennessee, USA., Stolldorf DP; Vanderbilt University School of Nursing, Nashville, Tennessee, USA., Sinclair VG; Vanderbilt University School of Nursing, Nashville, Tennessee, USA., Dietrich MS; Vanderbilt University School of Nursing, Nashville, Tennessee, USA.; Department of Biostatistics, Vanderbilt University School of Medicine, Nashville, Tennessee, USA., Adair MA; Vanderbilt University School of Nursing, Nashville, Tennessee, USA., Akard T; Vanderbilt University School of Nursing, Nashville, Tennessee, USA., Ridner S; Vanderbilt University School of Nursing, Nashville, Tennessee, USA.
Jazyk:	angličtina
Zdroj:	Health care for women international [Health Care Women Int] 2024; Vol. 45 (6), pp. 657-677. Date of Electronic Publication: 2023 Apr 19.
DOI:	10.1080/07399332.2023.2190984
Abstrakt:	The researchers' aims for this preliminary study was to develop an instrument, guided by the Theory of Health-related Family Quality of Life, to measure health-related family quality of life (HR-FQoL) as perceived by women with cancer. The researchers used a two phase design for instrument development: (1) establishing face validity of a 38-item instrument with an expert panel and patient review, and (2) focusing on the internal structure and construct validity of the instrument with responses from female patients ( N  = 236) with a cancer diagnosis (breast, gynecologic). The researchers identified a final 25-item HR-FQoL instrument with four sub-scales that each captured multiple concepts within the Theory of HR-FQoL. The resulting instrument maybe used by researchers and clinicians to assess various aspects of health-related family quality of life among female breast and gynecological cancer survivors.
Databáze:	MEDLINE
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