A community living experience: Views of people with intellectual disability with extensive support needs, families, and professionals.

Autor: Esteban L; Institute for Community Inclusion (INICO). University of Salamanca, Spain., Navas P; Institute for Community Inclusion (INICO). University of Salamanca, Spain. Electronic address: patricianavas@usal.es., Verdugo MÁ; Institute for Community Inclusion (INICO). University of Salamanca, Spain., Iriarte EG; School of Social Work and Social Policy, Trinity College Dublin, Ireland., Arias VB; Institute for Community Inclusion (INICO). University of Salamanca, Spain.
Jazyk: angličtina
Zdroj: Research in developmental disabilities [Res Dev Disabil] 2023 Jun; Vol. 137, pp. 104503. Date of Electronic Publication: 2023 Apr 13.
DOI: 10.1016/j.ridd.2023.104503
Abstrakt: Background: Despite the benefits of community living for people with intellectual disabilities (ID) and extensive support needs, they remain highly institutionalized.
Aims: To qualitatively analyze the perceptions of people with ID, including those with extensive support needs, professionals, and family members six months after the implementation of 11 community homes for 47 people in different regions of Spain METHODS: Thematic analysis of 77 individual interviews conducted with 13 people with ID, 30 professionals and 34 family members was performed using Nvivo12.
Results: Seven themes were found: (1) "the room as I like it", (2) "sometimes I don't obey", (3) "here I do a bit of everything", (4) "lots of people love me here", (5) "all thanks to them, who have helped me" (6) "I miss my mom", and (7) "I'm happy here".
Implications: Transitioning into the community has shown a clear positive change in emotional well-being, opportunities to participate in activities or exercise control over one's life. Nevertheless, certain restrictions were still present in people's lives, which significantly limit their right to independent living. While many of these restrictions may disappear, professional practices typical of a medical model can be recreated in services located in the community.
Competing Interests: Declarations of interest None.
(Copyright © 2023 The Authors. Published by Elsevier Ltd.. All rights reserved.)
Databáze: MEDLINE
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