| Autor: |
Williford DN; Division of Behavioral Medicine and Clinical Psychology, Center for Treatment Adherence and Self-Management., McTate EA; Department of Psychiatry and Psychology, Department of Pediatrics, Mayo Clinic., Hood AM; Division of Psychology and Mental Health, University of Manchester., Reader SK; Center for Healthcare Delivery Science, Nemours Children's Health System., Hildenbrand AK; Center for Healthcare Delivery Science, Nemours Children's Health System., Smith-Whitley K; Division of Hematology, Children's Hospital of Philadelphia., Creary SE; Division of Hematology/Oncology/BMT, Nationwide Children's Hospital., Thompson AA; Division of Hematology, Children's Hospital of Philadelphia., Hackworth R; Cincinnati Children's Hospital Medical Center Partner., Raphael JL; Department of Pediatrics, Section of Hematology-Oncology, Section of Academic General Pediatrics, Baylor College of Medicine., Crosby LE; Division of Behavioral Medicine and Clinical Psychology, Center for Treatment Adherence and Self-Management. |
| Abstrakt: |
Psychologists have an ethical responsibility to advance health equity and can play a significant role in improving health care experiences for families racialized as Black, including those with sickle cell disease (SCD), a group of genetic blood disorders primarily affecting communities of color. Parents of children with SCD report experiences of stigma and discrimination due to racism in the health care system. The current commentary describes the application of antiracism and participatory strategies to the research design, implementation, and dissemination of a behavioral medicine clinical trial (Engage-HU; NCT03442114) of shared decision-making (SDM) for pediatric patients with SCD, including (a) the development of a research question to promote justice for racialized groups; (b) a focus on "redressing imbalances" through SDM and a multidisciplinary, inclusive research team led by a Black psychologist; (c) community participatory approaches through the integration of stakeholder feedback across the study; and (d) centering context by attending to structural realities in response to the COVID-19 and racism pandemics. With attention to the fact that most primary caregivers of children with SCD are Black women, an intersectionality lens was applied. Implications and considerations for psychologists working to advance health equity in medical settings are also discussed. (PsycInfo Database Record (c) 2023 APA, all rights reserved). |
