The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature.

Autor: McLaughlin DE; Bascom Palmer Eye Institute, University of Miami Miller School of Medicine, Miami, FL, USA., Semrov A; Population, Policy and Practice Research and Teaching Department, GOS Institute of Child Health, University College London, London, UK.; Ulverscroft Vision Research Group UCL, London, UK., Munshi H; Bascom Palmer Eye Institute, University of Miami Miller School of Medicine, Miami, FL, USA., Patel AJ; Bascom Palmer Eye Institute, University of Miami Miller School of Medicine, Miami, FL, USA., Rahi J; Population, Policy and Practice Research and Teaching Department, GOS Institute of Child Health, University College London, London, UK.; Ulverscroft Vision Research Group UCL, London, UK.; Great Ormond Street Hospital NHS Foundation, London, UK.; Institute of Ophthalmology UCL, London, UK., Grajewski AL; Bascom Palmer Eye Institute, University of Miami Miller School of Medicine, Miami, FL, USA. agrajewski@med.miami.edu.
Jazyk: angličtina
Zdroj: Eye (London, England) [Eye (Lond)] 2023 Oct; Vol. 37 (15), pp. 3157-3173. Date of Electronic Publication: 2023 Mar 22.
DOI: 10.1038/s41433-023-02492-1
Abstrakt: We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.
(© 2023. The Author(s).)
Databáze: MEDLINE
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