The systematic and participatory development of a patient decision aid about terminal devices for people with upper limb absence: The PDA-TULA.

Autor:	Kerver N; Department of Rehabilitation Medicine, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands., Boerema L; Department of Rehabilitation Medicine, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands., Brouwers MAH; De Hoogstraat Rehabilitation, Utrecht, the Netherlands., van der Sluis CK; Department of Rehabilitation Medicine, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands., van Twillert S; University of Groningen, University Medical Center Groningen, UMC Staff Policy and Management Support, Groningen, the Netherlands.
Jazyk:	angličtina
Zdroj:	Prosthetics and orthotics international [Prosthet Orthot Int] 2023 Jun 01; Vol. 47 (3), pp. 281-287. Date of Electronic Publication: 2023 Mar 20.
DOI:	10.1097/PXR.0000000000000232
Abstrakt:	Selecting an upper limb prosthesis seems to be a challenge considering the high rejection rates. A patient decision aid (PDA) could support the decision-making process by providing information about available options and clarifying the patients' values related to those options. This study aims to describe the developmental process of a PDA about terminal devices (TDs) for people with upper limb absence: PDA-TULA. The developmental process was based on The International Patient Decision Aid Standards. We aimed at adults with major unilateral upper limb absence. A steering group including patients, clinicians, researchers, software and implementation experts was composed. The content and design of the PDA were based on a qualitative literature meta-synthesis, focus groups with patients and clinicians, surveys among patients and prosthetists, a nationwide digital meeting with clinicians and prosthetists, and information from manufacturers. Information on features of TDs was systematically collected, ordered, and refined. Subsequently, drafts of the PDA-TULA were made, improved, integrated into the software, and alpha tested. The digital PDA-TULA consists of three parts: (1) information about TDs; (2) consideration of personal values regarding the TDs; (3) comparison of TD profiles with a personal profile based on indicated preferences. A summarizing overview is offered to patients and clinicians. To conclude, a digital PDA, which was integrated into the national working process of clinicians, was developed in a systematic co-creation process. The PDA enables patients and their significant others to consider and formulate their preferences about TDs during the prosthesis selection process. (Copyright © 2023 The Authors. Published by Wolters Kluwer incorporated on behalf of The International Society for Prosthetics and Orthotics.)
Databáze:	MEDLINE
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