Out-of-pocket healthcare expenditures of Turkish households living with rare diseases.
| Autor: | Koçkaya G; ECONiX Research, Analysis and Consultancy Inc., Samsun, Türkiye., Oguzhan G; Department of Healthcare Management, Tarsus University, Mersin, Türkiye., Ökçün S; ECONiX Research, Analysis and Consultancy Inc., Samsun, Türkiye., Kurnaz M; ECONiX Research, Analysis and Consultancy Inc., Samsun, Türkiye. |
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| Jazyk: | angličtina |
| Zdroj: | Frontiers in public health [Front Public Health] 2023 Mar 03; Vol. 11, pp. 1051851. Date of Electronic Publication: 2023 Mar 03 (Print Publication: 2023). |
| DOI: | 10.3389/fpubh.2023.1051851 |
| Abstrakt: | Introduction: This study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing. Methods: The research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated. Results: A total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be Ł22,743 (€2,877). A significant relationship was found between income status and out-of-pocket health expenditures ( p = 0.012). Discussion: Policy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken. Competing Interests: GK is the owner. SÖ and MK are the employers of ECONiX Research which is an international company gives tailor-made consultancy services including but not limited to market access, health economics and outcome research, medical affairs, and business development for government and academic institutes, pharmaceuticals, medical devices, and healthcare services companies in Eastern Europe, the Middle East, North Africa, and Western Asia countries with offices in Estonia, Tunisia, and Turkey. The remaining author declares that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. (Copyright © 2023 Koçkaya, Oguzhan, Ökçün and Kurnaz.) |
| Databáze: | MEDLINE |
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