Freedom and loneliness: dementia caregiver experiences of the nursing home transition.

Autor:	Holton E; Department of Psychology, Maynooth University, Maynooth, Co. Kildare, Ireland., Boyle NB; Department of Psychology, Maynooth University, Maynooth, Co. Kildare, Ireland., Simons R; Older Persons Policy Development Unit, Department of Health, Government of Ireland, 50-58 Lower Baggot Street, Dublin 2, Ireland., Warters A; Services for Older Adults, Health Services Executive, Ballymun Civic Centre, Dublin 9, Ireland., O'Philbin L; Alzheimer Society of Ireland, Blackrock, Co Dublin, Ireland., Lawlor B; Global Brain Health Institute and School of Medicine, Trinity College Dublin, Dublin, Ireland., Gibb M; St James's Hospital, Dublin 8, Ireland., O'Sullivan R; Institute of Public Health, 700 SCR, Dublin 8, Ireland and Northern Ireland., Pertl M; Royal College of Surgeons in Ireland, St Stephen's Green, Dublin 2, Ireland., Quaid K; Dementia Research Advisory Team, Alzheimer Society of Ireland, Blackrock, Co Dublin, Ireland., Forrest R; Dementia Research Advisory Team, Alzheimer Society of Ireland, Blackrock, Co Dublin, Ireland., McHugh Power J; Department of Psychology, Maynooth University, Maynooth, Co. Kildare, Ireland.
Jazyk:	angličtina
Zdroj:	Age and ageing [Age Ageing] 2023 Mar 01; Vol. 52 (3).
DOI:	10.1093/ageing/afad033
Abstrakt:	Background: the transition to nursing home care has previously been linked to negative outcomes for spousal caregivers of persons with dementia (PwD). However, little is known about the experience or trajectory of loneliness in spousal caregivers during this time. Objectives: to explore experiences of loneliness in caregivers during the nursing home admission of their spouse or partner with dementia. Methods: semi-structured interviews were conducted with 11 individuals living in Ireland between Oct 2020 and June 2021, who were married to/partnered with a PwD who had, in the past 7 years, moved to full-time nursing home care. Data were collected and analysed using a deductive qualitative analytic strategy in the grounded theory tradition. Results: data were interpreted in the context of Weiss' typology of social and emotional loneliness and indicated that social loneliness increased for many at the point of diagnosis, decreasing somewhat after the transition, while emotional loneliness increased across the transition. Data were used to refine an existing synthesised model of loneliness, providing an updated model of the causes and contexts of loneliness. Conclusions: the transition to nursing home care differentially affects loneliness subtypes. Results have implications for other transitions, which should be assessed in terms of various subtypes of loneliness. Our refined theoretical synthesis model of loneliness also warrants further evaluation. (© The Author(s) 2022. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com.)
Databáze:	MEDLINE
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