Grandchildren of grandparents with Alzheimer's disease: Exploratory study of the impact of the disease on their relationships.
| Autor: | Megido MJ; Direcció Atenció Primària Metropolitana Sud. ICS. Departament de Salut. 16457Generalitat de Catalunya.; Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain., Celdrán M; Department of Cognition, Development and Educational Psychology, 16724Universidad de Barcelona, Barcelona, Spain., Ferrer A; Primary Healthcare Centre El Pla, 37494ICS, Sant Feliu de Llobregat, Spain., Roca M; Campus Bellvitge Escola d'infermeria, 73071Universidad de Barcelona, Barcelona, Spain., Pujol-Ribera E; 203271Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain., Zabaleta-Del-Olmo E; Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain.; Gerència Territorial de Barcelona, Institut Català de la Salut, Barcelona, Spain.; Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. |
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| Jazyk: | angličtina |
| Zdroj: | Dementia (London, England) [Dementia (London)] 2023 May; Vol. 22 (4), pp. 838-853. Date of Electronic Publication: 2023 Mar 14. |
| DOI: | 10.1177/14713012231162882 |
| Abstrakt: | The aim of this study was to describe the perception of changes that Alzheimer's disease in grandparents has made to the relationship with their grandchildren of between 6 and 13. Qualitative methodology was used. Semi-structured interviews were carried out with 25 grandchildren living in Catalonia, Spain. Participants reported a change in roles from being the care receiver to being the caregiver, changes in the activities that they did together and a positive impact on the grandparent's emotional wellbeing. In the physical sphere, sleeping problems were reported in grandchildren that cohabited with their grandparents. The feelings they described include fear of not being recognized by their grandparents and sadness, as well as satisfaction resulting from their affection and participating in caring. These findings suggest the need to provide information and resources for grandchildren and their families to enable them to deal with the disease. |
| Databáze: | MEDLINE |
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