At the intersection of trust and mistrust: A qualitative analysis of motivators and barriers to research participation at a safety-net hospital.

Autor: Tamlyn AL; Boston Medical Center, Section of Infectious Disease, Boston, MA, USA., Tjilos M; Boston Medical Center, Section of Infectious Disease, Boston, MA, USA., Bosch NA; Boston Medical Center, The Pulmonary Center, Department of Medicine, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Section of Pulmonary, Allergy, Sleep, & Critical Care, Department of Medicine, Boston, MA, USA., Barnett KG; Boston Medical Center, Department of Family Medicine, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Department of Family Medicine, Boston, MA, USA.; Harvard Center for Primary Care, Center for Primary Care, Boston, MA, USA.; Aspen Health Innovation, Washington, DC, USA., Perkins RB; Boston Medical Center, Department of Obstetrics and Gynecology, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Department of Obstetrics and Gynecology, Boston, MA, USA., Walkey A; Boston Medical Center, The Pulmonary Center, Department of Medicine, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Section of Pulmonary, Allergy, Sleep, & Critical Care, Department of Medicine, Boston, MA, USA.; Boston University School of Public Health, Department of Health Law Policy & Management, Boston, MA, USA., Assoumou SA; Boston Medical Center, Section of Infectious Disease, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Section of Infectious Disease Department of Medicine, Boston, MA, USA., Linas BP; Boston Medical Center, Section of Infectious Disease, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Section of Infectious Disease Department of Medicine, Boston, MA, USA.; Boston University School of Public Health, Department of Epidemiology, Boston, MA, USA., Drainoni ML; Boston University School of Public Health, Department of Health Law Policy & Management, Boston, MA, USA.; Boston University Chobanian & Avedisian School of Medicine, Section of Infectious Disease Department of Medicine, Boston, MA, USA.
Jazyk: angličtina
Zdroj: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2023 Jun; Vol. 26 (3), pp. 1118-1126. Date of Electronic Publication: 2023 Mar 10.
DOI: 10.1111/hex.13726
Abstrakt: Introduction: The underrepresentation of Black, Indigenous, and People of Color (BIPOC) individuals in healthcare research limits generalizability and contributes to healthcare inequities. Existing barriers and attitudes toward research participation must be addressed to increase the representation of safety net and other underserved populations.
Methods: We conducted semi-structured qualitative interviews with patients at an urban safety net hospital, focusing on facilitators, barriers, motivators, and preferences for research participation. We conducted direct content analysis guided by an implementation framework and used rapid analysis methods to generate final themes.
Results: We completed 38 interviews and identified six major themes related to preferences for engagement in research participation: (1) wide variation in research recruitment preferences; (2) logistical complexity negatively impacts willingness to participate; (3) risk contributes to hesitation toward research participation; (4) personal/community benefit, interest in study topic, and compensation serve as motivators for research participation; (5) continued participation despite reported shortcomings of informed consent process; and (6) mistrust could be overcome by relationship or credibility of information sources.
Conclusion: Despite barriers to participation in research studies among safety-net populations, there are also facilitators that can be implemented to increase knowledge and comprehension, ease of participation, and willingness to join research studies. Study teams should vary recruitment and participation methods to ensure equal access to research opportunities.
Patient/public Contribution: Our analysis methods and study progress were presented to individuals within the Boston Medical Center healthcare system. Through this process community engagement specialists, clinical experts, research directors, and others with significant experience working with safety-net populations supported data interpretation and provided recommendations for action following the dissemination of data.
(© 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd.)
Databáze: MEDLINE
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