"He is normal": phenomenological considerations of child/adolescent's perception of the disabled sibling.

Autor:	Freitag VL; Universidade de Cruz Alta (UNICRUZ), Centro de Ciência da Saúde e Agrárias, Departamento de Enfermagem. Cruz Alta, Rio Grande do Sul, Brasil., Motta MDGC; Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Departamento Materno Infantil. Porto Alegre, Rio Grande do Sul, Brasil., Milbrath VM; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Pelotas, Rio Grande do Sul, Brasil., Bazzan JS; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Pelotas, Rio Grande do Sul, Brasil., Debatin G; Universidade Federal de Santa Catarina (UFSC). Programa de Pós-Graduação em Filosofia. Florianópolis, Santa Catarina, Brasil., Gabatz RIB; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Pelotas, Rio Grande do Sul, Brasil.
Jazyk:	English; Portuguese
Zdroj:	Revista gaucha de enfermagem [Rev Gaucha Enferm] 2023 Mar 03; Vol. 43, pp. e20220129. Date of Electronic Publication: 2023 Mar 03 (Print Publication: 2023).
DOI:	10.1590/1983-1447.2022.20220129.en
Abstrakt:	Objective: To understand the child/adolescent's perception of the disabled sibling. Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation. Results: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality. Final Considerations: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling's lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.
Databáze:	MEDLINE
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