A plain language summary of what freedom from disease means to people with psoriasis according to doctors, nurses, and people with psoriasis.

Autor: Ee IV; Psoriasispatiënten Nederland (PN), Nijkerk, Netherlands., Deprez E; Ghent University Hospital, Ghent, Belgium., Egeberg A; Department of Dermatology, Copenhagen University Hospital - Bispebjerg & Frederiksberg, Copenhagen, Denmark.; Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark., Conrad C; Lausanne University Hospital CHUV, Lausanne, Switzerland., Corazza V; Fondazione Natalino Corazza Onlus Psoriasis & Co., Bologna, Italy., Donati L; Fondazione Natalino Corazza Onlus Psoriasis & Co., Bologna, Italy., Lambert J; Ghent University Hospital, Ghent, Belgium., Lăpădatu R; Associaţia Pacienţilor cu Afecţiuni Autoimune (APAA), Bucharest, Romania., Meyer A; Deutscher Psoriasis Bund e.V. (DPB), Hamburg, Germany., Paul C; Paul Sabatier University, Toulouse, France.; Centre Hospitalier Universitaire, Toulouse, France., Penzer-Hick R; University of Hertfordshire, Hatfield, UK., Stephen K; Ninewells Hospital, Dundee, Scotland, UK., der Zon JV; Psoriasispatiënten Nederland (PN), Nijkerk, Netherlands., Bewley A; Barts Health NHS Trust & Queen Mary University, London, UK.
Jazyk: angličtina
Zdroj: Journal of comparative effectiveness research [J Comp Eff Res] 2023 Apr; Vol. 12 (4), pp. e220206. Date of Electronic Publication: 2023 Feb 28.
DOI: 10.57264/cer-2022-0206
Abstrakt: What is this summary about? This summary presents findings from recent research involving people with psoriasis, based on an article originally published in the Journal of the European Academy of Dermatology and Venereology . Psoriasis is a condition that primarily affects the skin. However, it can also influence people's mental health, social activities, work, and relationships too. Current assessment tools used by doctors and nurses do not cover the complete experience of people with psoriasis, which often include other medical conditions and can leave these individuals feeling that treatment has not been successful. Researchers conducted a study in which people with psoriasis, doctors, and nurses were asked in virtual meetings and via questionnaires what freedom from disease in psoriasis means to them. What were the results? In addition to skin symptoms, the areas of mental health, well-being, treatment, and relationships with healthcare teams were found to be important aspects to be addressed. What do the results of the study mean? Focusing on all five aspects of freedom from disease will help people with psoriasis manage their psoriasis with confidence.
Databáze: MEDLINE