Assessment of the Effectiveness, Socio-Economic Impact and Implementation of a Digital Solution for Patients with Advanced Chronic Diseases: The ADLIFE Study Protocol.

Autor:	García-Lorenzo B; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., Gorostiza A; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., González N; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain.; Osakidetza Basque Health Service, Barrualde-Galdakao, Integrated Health Organisation, 48960 Galdakao, Spain., Larrañaga I; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., Mateo-Abad M; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain.; Biodonostia Health Research Institute, Paseo Dr. Begiristain s/n, 20014 Donostia, Basque Country, Spain., Ortega-Gil A; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., Bloemeke J; OptiMedis, Burchardstrasse 17, 20095 Hamburg, Germany., Groene O; OptiMedis, Burchardstrasse 17, 20095 Hamburg, Germany., Vergara I; Biodonostia Health Research Institute, Paseo Dr. Begiristain s/n, 20014 Donostia, Basque Country, Spain., Mar J; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain.; Unidad de Investigación AP-OSIs, Hospital Alto Deba, 20500 Arrasate-Mondragón, Gipuzkoa, Spain.; Instituto de Investigación Sanitaria Biodonostia, 20014 San Sebastián, Spain.; Red de Investigación en Servicios de Salud en Enfermedades Crónicas (REDISSEC), 48960 Galdakao, Spain.; Unidad de Gestión Sanitaria, Hospital Alto Deba, 20500 Arrasate-Mondragón, Gipuzkoa, Spain., Lim Choi Keung SN; School of Engineering, University of Birmingham, Birmingham B15 2TT, UK.; Institute of Digital Healthcare, WMG, University of Warwick, Coventry CV4 7AL, UK., Arvanitis TN; School of Engineering, University of Birmingham, Birmingham B15 2TT, UK.; Institute of Digital Healthcare, WMG, University of Warwick, Coventry CV4 7AL, UK.; Digital & Data Driven Research Unit, University Hospitals Coventry & Warwickshire NHS Trust, Clifford Bridge Road, Coventry CV2 2DX, UK., Kaye R; Assuta Medical Centre Ashdod, Ashdod 7747629, Israel., Dahary Halevy E; Assuta Medical Centre Ashdod, Ashdod 7747629, Israel., Nahir B; Assuta Medical Centre Ashdod, Ashdod 7747629, Israel.; Maccabi Healthcare Services Southern Region, Omer 8496500, Israel., Arndt F; Gesunder Werra-Meißner-Kreis GmbH, 37269 Eschwege, Germany., Dichmann Sorknæs A; Internal Medical & Emergency Department M/FAM, OUH, Svendvorg Hospital, Baagøes Allé 15, Indgang 51, 5700 Svendborg, Denmark., Juul NK; Internal Medical & Emergency Department M/FAM, OUH, Svendvorg Hospital, Baagøes Allé 15, Indgang 51, 5700 Svendborg, Denmark., Lilja M; Department of Public Health and Clinical Medicine, Unit of Research, Education and Development Östersund, Umeå University, 901 87 Umeå, Sweden., Sherman MH; R&D Project Office, Region Jämtland Härjedalen, 831 30 Östersund, Sweden., Laleci Erturkmen GB; SRDC, ODTU Teknokent Silikon Blok Kat: 1 No: 16 Cankaya, Ankara 06800, Turkey., Yuksel M; SRDC, ODTU Teknokent Silikon Blok Kat: 1 No: 16 Cankaya, Ankara 06800, Turkey., Robbins T; Digital & Data Driven Research Unit, University Hospitals Coventry & Warwickshire NHS Trust, Clifford Bridge Road, Coventry CV2 2DX, UK., Kyrou I; Digital & Data Driven Research Unit, University Hospitals Coventry & Warwickshire NHS Trust, Clifford Bridge Road, Coventry CV2 2DX, UK., Randeva H; Digital & Data Driven Research Unit, University Hospitals Coventry & Warwickshire NHS Trust, Clifford Bridge Road, Coventry CV2 2DX, UK., Maguire R; Department of Computing and Information Sciences, University of Strathclyde, Glasgow G1 1XQ, UK., McCann L; Department of Computing and Information Sciences, University of Strathclyde, Glasgow G1 1XQ, UK., Miller M; Department of Computing and Information Sciences, University of Strathclyde, Glasgow G1 1XQ, UK., Moore M; Department of Computing and Information Sciences, University of Strathclyde, Glasgow G1 1XQ, UK., Connaghan J; Department of Computing and Information Sciences, University of Strathclyde, Glasgow G1 1XQ, UK., Fullaondo A; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., Verdoy D; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain., de Manuel Keenoy E; Kronikgune Institute for Health Services Research, Ronda de Azkue 1, Torre del Bilbao Exhibition Centre, 48902 Barakaldo, Basque Country, Spain.
Jazyk:	angličtina
Zdroj:	International journal of environmental research and public health [Int J Environ Res Public Health] 2023 Feb 10; Vol. 20 (4). Date of Electronic Publication: 2023 Feb 10.
DOI:	10.3390/ijerph20043152
Abstrakt:	Due to population ageing and medical advances, people with advanced chronic diseases (ACD) live longer. Such patients are even more likely to face either temporary or permanent reduced functional reserve, which typically further increases their healthcare resource use and the burden of care on their caregiver(s). Accordingly, these patients and their caregiver(s) may benefit from integrated supportive care provided via digitally supported interventions. This approach may either maintain or improve their quality of life, increase their independence, and optimize the healthcare resource use from early stages. ADLIFE is an EU-funded project, aiming to improve the quality of life of older people with ACD by providing integrated personalized care via a digitally enabled toolbox. Indeed, the ADLIFE toolbox is a digital solution which provides patients, caregivers, and health professionals with digitally enabled, integrated, and personalized care, supporting clinical decisions, and encouraging independence and self-management. Here we present the protocol of the ADLIFE study, which is designed to provide robust scientific evidence on the assessment of the effectiveness, socio-economic, implementation, and technology acceptance aspects of the ADLIFE intervention compared to the current standard of care (SoC) when applied in real-life settings of seven different pilot sites across six countries. A quasi-experimental trial following a multicenter, non-randomized, non-concurrent, unblinded, and controlled design will be implemented. Patients in the intervention group will receive the ADLIFE intervention, while patients in the control group will receive SoC. The assessment of the ADLIFE intervention will be conducted using a mixed-methods approach.
Databáze:	MEDLINE
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