| Autor: |
Rhodes ET; Division of Endocrinology, Boston Children's Hospital, Boston, MA, USA., Phan TT; Department of General Pediatrics, Nemours Children's Health System/Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, PA, USA., Earley ER; Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Eneli I; Center for Healthy Weight and Nutrition, Nationwide Children's Hospital, Columbus, OH, USA., Haemer MA; Section of Nutrition, Department of Pediatrics, University of Colorado, Denver, CO, USA., Highfield NC; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Khan S; The Healthy Weight Program and Policy Lab, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Kim G; Department of Pediatrics, University of Washington, Seattle, WA, USA., Kirk S; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.; The Heart Institute and Center for Better Health and Nutrition, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Sullivan EM; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Stoll JM; Division of Gastroenterology, Hepatology & Nutrition, Department of Pediatrics, Washington University School of Medicine, St. Louis, MO, USA., Werk LN; Department of Pediatrics, Nemours Children's Hospital, Orlando, FL, USA., Zeribi KA; Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Forrest CB; Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA., Lannon C; Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA. |
| Abstrakt: |
Background: Patient-reported outcomes (PROs) can assess chronic health. The study aims were to pilot a survey through the PEDSnet Healthy Weight Network (HWN), collecting PROs in tertiary care pediatric weight management programs (PWMP) in the United States, and demonstrate that a 50% enrollment rate was feasible; describe PROs in this population; and explore the relationship between child/family characteristics and PROs. Methods: Participants included 12- to 18-year-old patients and parents of 5- to 18-year-olds receiving care at PWMP in eight HWN sites. Patient-Reported Outcomes Measurement Information System (PROMIS ® ) measures assessed global health (GH), fatigue, stress, and family relationships (FR). T-score cut points defined poor GH or FR or severe fatigue or stress. Generalized estimating equations explored relationships between patient/family characteristics and PROMIS measures. Results: Overall, 63% of eligible parents and 52% of eligible children enrolled. Seven sites achieved the goal enrollment for parents and four for children. Participants included 1447 children. By self-report, 44.6% reported poor GH, 8.6% poor FR, 9.3% severe fatigue, and 7.6% severe stress. Multiple-parent household was associated with lower odds of poor GH by parent proxy report [adjusted odds ratio (aOR) 0.69, 95% confidence interval (CI) 0.55-0.88] and poor FR by self-report (aOR 0.36, 95% CI 0.17-0.74). Parents were significantly more likely to report that the child had poor GH and poor FR when a child had multiple households. Conclusions: PROs were feasibly assessed across the HWN, although implementation varied by site. Nearly half of the children seeking care in PWMP reported poor GH, and family context may play a role. Future work may build on this pilot to show how PROs can inform clinical care in PWMP. |
