"You don't accept he's completely ok": a reflexive thematic analysis of parents' roles in monitoring their child's health and symptoms after finishing childhood cancer treatment.

Autor: Loecher N; Department of Mental Health Law and Policy, University of South Florida, 13301 Bruce B Downs Blvd, Tampa, FL, 33613, USA. nloecher@usf.edu., Jordan A; Department of Psychology & Centre for Pain Research, University of Bath, Bath, UK., Spunt SL; Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA., Simon P; Lucile Packard Children's Hospital at Stanford, Palo Alto, CA, USA., Simons LE; Department of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Stanford, CA, USA., Dahl G; Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA.; Lucile Packard Children's Hospital at Stanford, Palo Alto, CA, USA., Kosyluk K; Department of Mental Health Law and Policy, University of South Florida, 13301 Bruce B Downs Blvd, Tampa, FL, 33613, USA., Heathcote LC; Health Psychology Section, Institute of Psychiatry Psychology and Neuroscience, King's College London, London, UK.
Jazyk: angličtina
Zdroj: Journal of cancer survivorship : research and practice [J Cancer Surviv] 2024 Jun; Vol. 18 (3), pp. 950-959. Date of Electronic Publication: 2023 Feb 23.
DOI: 10.1007/s11764-023-01353-w
Abstrakt: Objectives/purpose: Childhood cancer survival brings continued mental and physical health challenges both for the child and for the family. In this study, we investigated how parents viewed their roles in their child's health and symptom monitoring during the survivorship period.
Methods: Twenty-one parents of childhood cancer survivors (n = 18 mothers; parent mage = 49.78 years, child mage = 18.50 years; range = 12-25 years), whose children were at least one year off-treatment (m = 3.67 years; SD = 2.25; various diagnoses), completed semi-structured interviews. Interviews were recorded, transcribed, and analyzed using reflexive thematic analysis.
Results: Analyses generated three themes which reflect roles that parents may adopt in the context of monitoring symptoms in their childhood cancer survivor. "Vigilant Mama and Papa" (theme 1) described parents who expressed a strong sense of responsibility for protecting their child's health during survivorship resulting in careful monitoring of their child's symptoms and health. "Pragmatic Mamas and Papas" (theme 2) described parents who adopted an approach to symptom and health monitoring that emphasized moving past cancer and focusing on the future. Finally, "Encouraging Mamas and Papas" (theme 3) described parents who focused on educating and preparing their child to develop an autonomous approach to health and symptom self-monitoring as they transitioned to survivorship and adulthood.
Conclusion: Parents take on varying roles in monitoring their child's symptoms and health after finishing childhood cancer treatment.
Implications for Cancer Survivors: Understanding the ways in which parents continue to be involved in their child's cancer journey helps researchers develop interventions to support dyadic coping in survivorship.
(© 2023. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
Databáze: MEDLINE
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