Early cochlear implantation in prelingual profound hearing loss in Italy, analyzed by means of a social media survey.
| Autor: | Orzan E; Institute for Maternal and Child Health IRCCS 'Burlo Garofolo', Trieste, Italy., Pizzamiglio G; Department of Radiology, University of Trieste, Trieste, Italy., Magadle J; Neurology Department, Hadassah University Hospital (Ein Kerem), The Hebrew University, Jerusalem, Israel., Bubbico L; Department of Sensorineural Disabilities, INAPP/Italian Institute of Social Medicine, Rome, Italy., Cutler JM; NPO Associazione ASI Affrontiamo la Sordità Insieme, Carpi, Italy., Consolino P; ENT Department, Martini Hospital, Turin, Italy., Burdo S; NPO Associazione Italiana Liberi di Sentire, Varese, Italy., Zamagni G; Institute for Maternal and Child Health IRCCS 'Burlo Garofolo', Trieste, Italy., Magni E; Institute for Maternal and Child Health IRCCS 'Burlo Garofolo', Trieste, Italy., Mariottini C; NPO Famiglie Associate per la Difesa dei Diritti Degli Audiolesi Dell'Umbria (FIADDA Umbria), Castiglione del Lago (Perugia), Italy., Gambacorta V; Department of Surgery and Biomedical Sciences, Section of Otorhinolaryngology, University of Perugia, Perugia, Italy., Ricci G; Department of Surgery and Biomedical Sciences, Section of Otorhinolaryngology, University of Perugia, Perugia, Italy., Brotto D; Otorhinolaryngology Section, Neurosciences Department, Università di Padova, Padova, Italy. |
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| Jazyk: | angličtina |
| Zdroj: | Frontiers in pediatrics [Front Pediatr] 2023 Feb 03; Vol. 11, pp. 1031341. Date of Electronic Publication: 2023 Feb 03 (Print Publication: 2023). |
| DOI: | 10.3389/fped.2023.1031341 |
| Abstrakt: | Objective: To assess newborn hearing screening (NHS) impact on timing of cochlear implant (CI) surgery of patients with prelingual bilateral profound hearing impairment (BPHI), in order to evaluate whether the NHS ultimately serves the needs of the target population in Italy. Methods: An online questionnaire was created to survey subjects affected by prelingual BPHL born between 1990 and 2018. Questions focused on age at BPHI diagnosis, first and second CI surgery (if performed), and the region in which the surgery was performed. The survey was distributed to potential participants via social media communities used by hearing impaired people or their family members for sharing advice and offering support. Responses were analyzed using descriptive statistics. Results: Among the 318 respondents who completed the questionnaire, 276 (87%) reported having chosen CI surgery, 2/3 of them bilaterally. In the vast majority (97%) of cases the CI is used on a daily basis. Most of the people residing in the center (65%) and southern Italy (71%) had to move from their region of residence to perform the surgery. Late CI surgery was associated with failure to perform NHS ( p = 0.007), birth before 2011 ( p = 0.009), definitive diagnosis of BPHI after 6 months of life ( p = 0.002), and progressive hearing impairment ( p < 0.001). Conclusion: The worldwide scientific approval of the NHS as the current best opportunity for early diagnosis and CI treatment for prelingual BPHI is confirmed by what patients and families reported via the online questionnaire used for this study. In recent years, early bilateral cochlear implantation has become increasingly available in Italy, but late diagnosis, progressive hearing loss, failure to perform the NHS and lack of follow-up are still open questions. A large proportion of families had to move from the region of residence to have their child undergo CI surgery, revealing inequalities in terms of geographical disparities. Social media has proved to be a valuable, fast and inexpensive tool for gathering information on the effectiveness of health prevention programs, involving a large sample of individuals in a short amount of time. Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. (© 2023 Orzan, Pizzamiglio, Magadle, Bubbico, Cutler, Consolino, Burdo, Zamagni, Magni, Mariottini, Gambacorta, Ricci and Brotto.) |
| Databáze: | MEDLINE |
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