Mi PROTECT: A personalized smartphone platform to report back results to participants of a maternal-child and environmental health research cohort program in Puerto Rico.

Autor:	Cardona Cordero NR; Department of Social Sciences, School of Public Health, Medical Sciences Campus, University of Puerto Rico, San Juan, Puerto Rico., Lafarga Previdi I; Center for Collaborative Research in Health Disparities, Medical Sciences Campus, University of Puerto Rico, San Juan, Puerto Rico., Torres HR; College of Engineering, Northeastern University, Boston, Massachusetts, United States of America., Ayala I; College of Engineering, Northeastern University, Boston, Massachusetts, United States of America., Boronow KE; Silent Spring Institute, Newton, Massachusetts, United States of America., Santos Rivera A; College of Engineering, Northeastern University, Boston, Massachusetts, United States of America., Meeker JD; Department of Environmental Health Sciences, School of Public Health, University of Michigan, Ann Arbor, Michigan, United States of America., Alshawabkeh A; College of Engineering, Northeastern University, Boston, Massachusetts, United States of America., Cordero JF; Department of Epidemiology and Biostatistics at the University of Georgia's College of Public Health, Athens, Georgia, United States of America., Brody JG; Silent Spring Institute, Newton, Massachusetts, United States of America., Brown P; Social Science Environmental Health Research Institute, Northeastern University, Boston, Massachusetts, United States of America., Vélez Vega CM; Department of Social Sciences, School of Public Health, Medical Sciences Campus, University of Puerto Rico, San Juan, Puerto Rico.
Jazyk:	angličtina
Zdroj:	PLOS digital health [PLOS Digit Health] 2023 Jan 18; Vol. 2 (1), pp. e0000172. Date of Electronic Publication: 2023 Jan 18 (Print Publication: 2023).
DOI:	10.1371/journal.pdig.0000172
Abstrakt:	Background: The PROTECT Center is a multi-project initiative that studies the relationship between exposure to environmental contaminants and preterm births during the prenatal and postnatal period among women living in Puerto Rico. PROTECT's Community Engagement Core and Research Translation Coordinator (CEC/RTC) play a key role in building trust and capacity by approaching the cohort as an engaged community that provides feedback about processes, including how personalized results of their exposure to chemicals should be reported back. The goal of the Mi PROTECT platform was to create a mobile-based application of DERBI (Digital Exposure Report-Back Interface) for our cohort that provides tailored, culturally appropriate information about individual contaminant exposures as well as education on chemical substances and approaches to exposure reduction. Methods: Participants (N = 61) were presented with commonly used terms in environmental health research related to collected samples and biomarkers, followed by a guided training on accessing and exploring the Mi PROTECT platform. Participants evaluated the guided training and Mi PROTECT platform answering a Likert scale in separated surveys that included 13 and 8 questions, respectively. Results: Participants provided overwhelmingly positive feedback on the clarity and fluency of presenters in the report-back training. Most participants reported that the mobile phone platform was both accessible and easy to navigate (83% and 80%, respectively) and that images included in the platform facilitated comprehension of the information. Overall, most participants (83%) reported that language, images, and examples in Mi PROTECT strongly represented them as Puerto Ricans. Conclusions: Findings from the Mi PROTECT pilot test informed investigators, community partners and stakeholders by demonstrating a new way to promote stakeholder participation and foster the "research right-to-know." Competing Interests: The authors have declared that no competing interests exist. (Copyright: © 2023 Cardona Cordero et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu