Consensus recommendations for the improvement of inter- and intra-centre care coordination in the management of hemophilia.

Autor:	Montoro-Ronsano JB; Servicio de Farmacia Hospitalaria, Hospital Universitario Vall d'Hebrón, Barcelona, España. Electronic address: josebruno.montoro@vallhebron.cat., Poveda-Andrés JL; Servicio de Farmacia Hospitalaria, Hospital Universitario y Politécnico La Fe, Valencia, España., Romero-Garrido JA; Área de Hemoderivados, Servicio de Farmacia Hospitalaria, Hospital Universitario La Paz, Madrid, España., García-Barcenilla S; Unidad de Coagulopatías Congénitas y Adquiridas, Instituto de Investigación Hospital Universitario La Paz, Madrid, España., González-Álvarez I; Unidad de Hematología Clínica, Hospital de la Santa Creu i Sant Pau, Barcelona, España., Núñez-Vázquez R; Sección de Trombosis y Hemostasia, Servicio de Hematología, Unidad de Gestión Clínica de Hematología del Hospital Universitario Virgen del Rocío, Sevilla, España., Rambla-Pérez M; Hospital de la Santa Creu i Sant Pau, Barcelona, España., Soto-Ortega I; Sección de Hemostasia y Trombosis, Servicio de Hematología y Hemoterapia, Hospital Universitario Central de Asturias, Oviedo, España; Laboratorio de Investigación en Plaquetas, Instituto de Investigación Sanitaria del Principado de Asturias, Oviedo, España.
Jazyk:	English; Spanish; Castilian
Zdroj:	Farmacia hospitalaria : organo oficial de expresion cientifica de la Sociedad Espanola de Farmacia Hospitalaria [Farm Hosp] 2023 May-Jun; Vol. 47 (3), pp. 100-105. Date of Electronic Publication: 2023 Feb 08.
DOI:	10.1016/j.farma.2023.01.003
Abstrakt:	Objective: Define consensus recommendations to improve care coordination between Hospital Pharmacy, Haematology and Nursing, inter- and intra-center, in the care of haemophilia patients. Method: Recommendations for the improvement of care coordination in the management of haemophilia patients were identified and assessed by a multidisciplinary panel of professionals with experience in this field (Hospital Pharmacy, Haematology and Nursing) and supported by scientific evidence. The identified recommendations were assessed by Rand/UCLA consensus methodology (Delphi-adapted) based on their appropriateness and, subsequently, on their necessity. In both cases, it was used ordinal Likert scale. Data were statistically analysed through different metrics. Results: Fifty-three recommendations for the improvement of care coordination between Hospital Pharmacy, Haematology and Nursing in the management of haemophilia patients were identified, grouped into eight areas of action: i) Haemophilia units, reference centers and multidisciplinary care; ii) Role of Haematology, Hospital Pharmacy and Nursing in the patient journey of haemophilia patients; iii) Telepharmacy and telemedicine; iv) Pharmacokinetic monitoring; v) Transition to adult patient regimen; vi) Patient health education; vii) Surgery, emergency room and hospital admission; and viii) Outcome evaluation. All recommendations were assessed as appropriate and necessary by the external expert panel. Conclusions: Haemophilia patient journey is complex and depends on different variables. It also requires the involvement of different healthcare professionals who must act in a coordinated and integrated manner at all stages of the patient's life, adapted to their individual needs. On this matter, the identified and agreed recommendations may improve continuity and quality of care, as they facilitate the integration and coordination of the professionals involved in the management of this pathology, especially Hospital Pharmacy, Haematology and Nursing. (Copyright © 2023 Sociedad Española de Farmacia Hospitalaria (S.E.F.H). Publicado por Elsevier España, S.L.U. All rights reserved.)
Databáze:	MEDLINE
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