Development of a standard set of PROs and generic PROMs for Dutch medical specialist care : Recommendations from the Outcome-Based Healthcare Program Working Group Generic PROMs.

Autor: Oude Voshaar M; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands. a.h.oudevoshaar@utwente.nl.; Department of Medical Cell BioPhysics & TechMed Center, University of Twente, Enschede, The Netherlands. a.h.oudevoshaar@utwente.nl., Terwee CB; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands.; Epidemiology and Data Science, Amsterdam UMC Location Vrije Universiteit, Amsterdam, the Netherlands.; Methodology, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands., Haverman L; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands.; Dutch Society of Medical Specialists, Amphia Hospital, Utrecht, The Netherlands.; Dutch Nurses' Association, Amphia Hospital, Utrecht, The Netherlands., van der Kolk B; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands., Harkes M; Dutch Society of Medical Specialists, Amphia Hospital, Utrecht, The Netherlands., van Woerden CS; Dutch Society of Medical Specialists, Amphia Hospital, Utrecht, The Netherlands., van Breda F; Dutch Society of Medical Specialists, Amphia Hospital, Utrecht, The Netherlands., Breukink S; Dutch Society of Medical Specialists, Amphia Hospital, Utrecht, The Netherlands., de Hoop I; Dutch Nurses' Association, Amphia Hospital, Utrecht, The Netherlands., Vermeulen H; Dutch Nurses' Association, Amphia Hospital, Utrecht, The Netherlands., de Graaf E; Dutch Nurses' Association, Amphia Hospital, Utrecht, The Netherlands., Hazelzet J; Dutch Federation of University Medical Centres, Utrecht, The Netherlands., van Leiden B; National Association of Dutch Health Insurers, Zeist, The Netherlands., Stienen J; Dutch Hospital Association &, Amphia Hospital, Breda, The Netherlands., Hoekstra M; Private Clinics Netherlands, Zoetermeer, The Netherlands., Bart H; The Netherlands Patients Federation, Utrecht, The Netherlands., van Bommel H; Pharos - Dutch Centre of Expertise On Health Disparities, Utrecht, The Netherlands., Determann D; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands., Verburg M; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands., van der Wees P; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands.; Radboud University Medical Center, Radboud Institute for Health Sciences, IQ Healthcare and Department of Rehabilitation, Nijmegen, The Netherlands., Beurskens AJ; National Health Care Institute (Zorginstituut Nederland), Diemen, The Netherlands.; Department of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, The Netherlands.
Jazyk: angličtina
Zdroj: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Jun; Vol. 32 (6), pp. 1595-1605. Date of Electronic Publication: 2023 Feb 09.
DOI: 10.1007/s11136-022-03328-3
Abstrakt: Purpose: The added value of measuring patient-reported outcomes (PROs) for delivering patient-centered care and assessment of healthcare quality is increasingly evident. However, healthcare system wide data collection initiatives are hampered by the proliferation of patient-reported outcome measures (PROMs) and conflicting data collection standards. As part of a national initiative of the Dutch Ministry of Health, Welfare and Sport we developed a consensus-based standard set of generic PROs and PROMs to be implemented across Dutch medical specialist care.
Methods: A working group of mandated representatives of umbrella organizations involved in Dutch medical specialist care, together with PROM experts and patient organizations worked through a structured, consensus-driven co-creation process. This included literature reviews, online expert and working group meetings, and feedback from national patient- and umbrella organizations. The 'PROM-cycle' methodology was used to select feasible, valid, and reliable PROMs to obtain domain scores for each of the PROs included in the set.
Results: Eight PROs across different domains of health were ultimately endorsed: symptoms (pain & fatigue), functioning (physical, social/participation, mental [anxiety & depression]), and overarching (quality of life & perceived overall health). A limited number of generic PROMs was endorsed. PROMIS short forms were selected as the preferred instruments for all PROs. Several recommendations were formulated to facilitate healthcare system level adoption and implementation of the standard set.
Conclusions: We developed a consensus-based standard set of Generic PROMs and a set of recommendations to facilitate healthcare system wide implementation across Dutch medical specialist care.
(© 2023. The Author(s).)
Databáze: MEDLINE
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