The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children.

Autor: D'Arcy E; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Burnett T; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Capstick E; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Elder C; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Slee O; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Girdler S; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Scott M; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia., Milbourn B; Curtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia. ben.milbourn@curtin.edu.au.
Jazyk: angličtina
Zdroj: Journal of autism and developmental disorders [J Autism Dev Disord] 2024 May; Vol. 54 (5), pp. 1857-1869. Date of Electronic Publication: 2023 Feb 09.
DOI: 10.1007/s10803-023-05910-1
Abstrakt: Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs.
(© 2023. The Author(s).)
Databáze: MEDLINE
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