Transforming the nutrition care model for infants with cystic fibrosis: A qualitative study of clinicians' perspectives.

Autor: Ong T; Department of Pediatrics, Division of Pulmonary and Sleep Medicine, University of Washington, Seattle, Washington, USA.; Cystic Fibrosis Center, Seattle Children's Hospital, Seattle, Washington, USA., Bell S; Cystic Fibrosis Center, Seattle Children's Hospital, Seattle, Washington, USA., Britto MT; James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA., Gamel B; Pediatric Cystic Fibrosis Center, Children's Health, University of Texas-Southwestern, Dallas, Texas, USA., McNamara S; Cystic Fibrosis Center, Seattle Children's Hospital, Seattle, Washington, USA., Ramsey B; Department of Pediatrics, Division of Pulmonary and Sleep Medicine, University of Washington, Seattle, Washington, USA.; Cystic Fibrosis Center, Seattle Children's Hospital, Seattle, Washington, USA., Barton KS; Biostatistics Epidemiology and Analytics for Research (BEAR) Core, Seattle Children's Research Institute, Seattle, Washington, USA.
Jazyk: angličtina
Zdroj: Pediatric pulmonology [Pediatr Pulmonol] 2023 May; Vol. 58 (5), pp. 1380-1390. Date of Electronic Publication: 2023 Feb 08.
DOI: 10.1002/ppul.26330
Abstrakt: Clinician perspectives may inform health service strategies to meet optimal nutrition needs for infants with cystic fibrosis (CF). We conducted a qualitative study with CF-specialized dietitians (registered dietitians [RDs]) and physicians between July to December 2020 to characterize the current state of infant nutrition care delivery and organize input into a conceptual model to inform CF care program strategies. Among 42 participants, 36 completed survey responses and 6 completed interviews; 93% were RDs. Three global themes emerged in the current care model: nutrition management, family centered connections, and collaborative care delivery. Within nutrition management, clinicians emphasized providing education, setting goals, and maintaining adequate follow-up with families. Under family centered connections, clinicians expressed the need to foster relationships with families and link families to resources for assistance to social stressors such as food insecurity. Collaborative care delivery for clinicians interviewed was defined by sharing expertise from across the interdisciplinary team. Based on the timing of this study, clinicians reported compelling examples for various modes of telehealth and home weight monitoring to facilitate and support these domains of nutrition care, including potential advantages for education, supporting family needs, and communication. We integrate these themes to propose a conceptual model to organize complementary in-person and telehealth activities and enhance quality infant CF nutrition care delivery. Future implementation can refine this model through testing of practical telehealth interventions to optimize nutrition outcomes for infants with CF.
(© 2023 Wiley Periodicals LLC.)
Databáze: MEDLINE
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