Quality standards for the care of people with giant cell arteritis in secondary care.

Autor:	Coath FL; Vasculitis Service, Rheumatology Department, Norfolk and Norwich Hospital, Norfolk, UK., Bukhari M; Rheumatology Department, University Hospitals of Morecambe Bay NHS Foundation Trust, Royal Lancaster Infirmary, Lancaster, UK.; Faculty of Health and Medicine, Lancaster University, Bailrigg, Lancaster, UK., Ducker G; Vasculitis Service, Rheumatology Department, Norfolk and Norwich Hospital, Norfolk, UK., Griffiths B; Rheumatology Department, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.; Chair of the Specialised Rheumatology Clinical Reference Group, NHS England, London, UK., Hamdulay S; Rheumatology Department, London Northwest University Healthcare NHS Trust, London, UK., Hingorani M; Moorfields Eye Hospital, London, UK., Horsburgh C; PMRGCAuk, London, UK., Jones C; Department of Ophthalmology, Norfolk and Norwich Hospital, Norfolk, UK., Lanyon P; Rheumatology Department, Nottingham University Hospitals NHS Trust, Nottingham, UK.; National Clinical Co-Lead for Rheumatology, NHS Improvement, London, UK., Mackie S; Rheumatology Department, University of Leeds, Leeds Teaching Hospital NHS Trust, Leeds, UK., Mollan S; Birmingham Neuro-Ophthalmology Unit, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK., Mooney J; School of Health and Social Care, University of Staffordshire, Stafford, UK., Nair J; Department of Rheumatology, Liverpool University Hospitals, Liverpool, UK., Patil A; Ophthalmology Department, University Hospitals Birmingham, Birmingham, UK., Robson J; Rheumatology Department, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK., Saravanan V; Rheumatology Department, Queen Elizabeth Hospital, Gateshead, UK., O'Sullivan EP; Ophthalmology Department, King's College Hospital, London, UK., Whitlock M; Rheumatology Department, Southend Hospital, Mid and South Essex NHS Foundation Trust, Essex, UK., Mukhtyar CB; Vasculitis Service, Rheumatology Department, Norfolk and Norwich Hospital, Norfolk, UK.
Jazyk:	angličtina
Zdroj:	Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2023 Sep 01; Vol. 62 (9), pp. 3075-3083.
DOI:	10.1093/rheumatology/kead025
Abstrakt:	Objective: GCA is the commonest primary systemic vasculitis in adults, with significant health economic costs and societal burden. There is wide variation in access to secondary care GCA services, with 34% of hospitals in England not having any formal clinical pathway. Quality standards provide levers for change to improve services. Methods: The multidisciplinary steering committee were asked to anonymously put forward up to five aspects of service essential for best practice. Responses were qualitatively analysed to identify common themes, subsequently condensed into domain headings, and ranked in order of importance. Quality standards and metrics for each domain were drafted, requiring a minimum 75% agreement. Results: 13 themes were identified from the initial suggestions. Nine quality standards with auditable metrics were developed from the top 10 themes. Patient Access, glucocorticoid use, pathways, ultrasonography, temporal artery biopsy, PET scan access, rheumatology/ophthalmology expertise, education, multidisciplinary working have all been covered in these quality standards. Access to care is a strand that has run through each of the developed standards. An audit tool was developed as part of this exercise. Conclusion: These are the first consensus auditable quality standards developed by clinicians from rheumatology and ophthalmology, nursing representatives and involvement of a patient charity. We hope that these standards will be adopted by commissioning bodies to provide levers for change from the improvement of patient care of individuals with GCA. (© The Author(s) 2023. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For permissions, please email: journals.permissions@oup.com.)
Databáze:	MEDLINE
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