Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care.

Autor: Martino SC; RAND Corporation, Pittsburgh, Pennsylvania, USA., Reynolds KA; RAND Corporation, Pittsburgh, Pennsylvania, USA., Grob R; Department of Family Medicine and Community Health, University of Wisconsin, Madison, Wisconsin, USA., Palimaru AI; RAND Corporation, Santa Monica, California, USA., Zelazny S; RAND Corporation, Pittsburgh, Pennsylvania, USA., Slaughter ME; RAND Corporation, Pittsburgh, Pennsylvania, USA., Rybowski L; The Severyn Group, Ashburn, Virginia, USA., Parker AM; RAND Corporation, Pittsburgh, Pennsylvania, USA., Toomey SL; Boston Children's Hospital, Boston, Massachusetts, USA.; Division of General Pediatrics, Harvard Medical School, Boston, Massachusetts, USA., Schuster MA; RAND Corporation, Santa Monica, California, USA.; Kaiser Permanente Bernard J. Tyson School of Medicine, Pasadena, California, USA., Schlesinger M; Department of Health Policy and Management, Yale University School of Public Health, New Haven, Connecticut, USA.
Jazyk: angličtina
Zdroj: Health services research [Health Serv Res] 2023 Apr; Vol. 58 (2), pp. 271-281. Date of Electronic Publication: 2023 Jan 29.
DOI: 10.1111/1475-6773.14134
Abstrakt: Objective: To evaluate the measurement properties of a set of six items designed to elicit narrative accounts of pediatric inpatient experience.
Data Sources: Data came from 163 participants recruited from a probability-based online panel of U.S. adults. Participants were family members of a child who had an overnight hospital stay in the past 12 months.
Study Design: Cross-sectional survey with follow-up phone interviews.
Data Collection/extraction Methods: Participants completed an online (n = 129) or phone (n = 34) survey about their child's hospitalization experience. The survey contained closed-ended items from the Child Hospital Consumer Assessment of Healthcare Providers and Systems (Child HCAHPS) survey, followed by the six narrative items. Approximately 2 weeks after completing the survey, 47 participants additionally completed a one-hour, semi-structured phone interview, the results of which served as a "gold standard" for evaluating the fidelity of narrative responses. Qualitative content analysis was used to code narrative and interview responses for domains of patient experience and actionability.
Principal Findings: The average narrative was 248 words (SD = 319). Seventy-nine percent of narratives mentioned a topic included in the Child HCAHPS survey; 89% mentioned a topic not covered by that survey; and 75% included at least one detailed description of an actionable event. Overall, there was 66% correspondence between narrative and interview responses. Correspondence was higher on the phone than in the online condition (75% vs. 59%).
Conclusions: Narratives elicited from rigorously designed multi-item sets can provide detailed, substantive information about pediatric inpatient experiences that hospitals could use to improve child and family experiences during pediatric hospitalization. They add context to closed-ended survey item responses and provide information about experiences of care important to children and families that are not included in quantitative surveys.
(© 2023 RAND Corporation and The Authors. Health Services Research published by Wiley Periodicals LLC on behalf of Health Research and Educational Trust.)
Databáze: MEDLINE
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